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pondy

Bone Pain & Other Odd Things...

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Hi everyone,

My G.I found evidence of what he guesses is Celiac disease & is currently confirming this via a blood test. I've been gluten free for 3 days.

I'm concerned about these other, seemingly unrelated, issues...

Bone pain - one month ago my pain began suddenly and severely in my right rib. The area is still super sore & tender. The pain radiates all over in my back. Is this in line with Celiac disease?

Weight loss - I've lost about 8 pounds in about a month. This is abnormal for me, as I'm almost always 155 lbs. (working out or not)

Bloody stool - red in color, sort of marbled throughout.

Dry skin, brain "fog", the blues & blahs, fatigue, hair breaking & falling out... I'm confused and worried!

My doctor tested my gall bladder, liver & kidneys - said things were "pretty normal".

Does any of this sound familiar? Thanks very much for any & all input!


"It is not the strongest of the species that survive, nor the most intelligent, but the ones most responsive to change"

- Charles Darwin

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Sure does sound familiar. Since you are done with testing you can start the diet. There is a chance of a false negative on the blood work so if the results do come back negative you would need to do a diet trial anyway. Might as well start now so you can start to heal. Go with mostly unprocessed whole foods and do keep in mind it can take some time to heal. Read as much as you can here and ask any questions you need to.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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YES! this is what I experienced for the most part before I was diagnosed last week. I didn't have the typical stomach issues I had fatigue, brain fog, bone/joint pain that radiated my whole left arm, neuropathy, insomnia. My Doctor ran test for everything under the sun and Celiac's is what came back positive. So I feel your pain literally. I have been gluten-free for 6 days and have noticed a small improvement but still have a long way to go.


Nicole

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Sure does sound familiar. Since you are done with testing you can start the diet. There is a chance of a false negative on the blood work so if the results do come back negative you would need to do a diet trial anyway. Might as well start now so you can start to heal. Go with mostly unprocessed whole foods and do keep in mind it can take some time to heal. Read as much as you can here and ask any questions you need to.

Thank you for the response - I'm grateful for this site!

I read that it can take up to two years for the intestinal villi to heal. Have others here found that to be the case? If so, is it nonsense for me to supplement with vitamins now? I mean, if I'm not absorbing nutrients then what's the point?

Sorry if the question seems silly - I'm just getting my sea legs here...


"It is not the strongest of the species that survive, nor the most intelligent, but the ones most responsive to change"

- Charles Darwin

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Welcome!

Oh Boy, is it familiar!! My rib cage hurts sometimes...it's screaming at me right now! :blink: I lost a lot of weight (90 lbs.), my hair, I am fatigued, depressed, insomnia, burning neuropathic pain..ETC ETC ETC :P and I also had NEG blood work. (Many of us do!)

Do not worry! ;)

You are in the right place for answers, help, info and encouragement from those who "get it". I could not have done this without the help of awesome people like Raven (above) and so many others. Get started right now on feeling better!! :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Rib cage pain

Depression

Anxiety

Bone pain

Headaches

All this and more have disappeared on going gluten free.

I hope you feel better soon.

Welcome!


Healing is a matter of time, but it is sometimes also a matter of opportunity.

--Hippocrates

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Rib cage pain

Depression

Anxiety

Bone pain

Headaches

All this and more have disappeared on going gluten free.

I hope you feel better soon.

Welcome!

PONDY!

See what I mean!!...here's another angel who "held my hand" since I joined the forum ...and their experiences at HEALING speak volumes....you're in the right place!! ;)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Welcome! Lot's and lots of strange ones for me, too:

Nerve pain, back pain, muscle twitches, canker sores, dizziness, fuzzy thinking. I could go on, but I won't. There's a big, bright, gluten-free light at the end of the tunnel!.

My blood test wasn't positive, BTW... "equivocal". Biopsy was positive though.

Happy eating.


Diagnosed 2/12/09 by biopsy after years of anemia, neuropathy, dizziness, brain fog, pain and more.

Negative blood tests (following gluten light diet)

Still healing with time, harmony, and good food.

Grain-free 1/11/11

Blogging Gluten-Free

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I think you should go ahead and start taking vitamins and iron. I am anemic and have low Vit D. I was put on a vit d supplement. your dr. should also do iron,calcium and.vit d levels.


11/19/10 diagnosed with Celiac disease after positive blood test

12/14/10 Biopsy positive for Celiac disease

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Rib pain especially right side.Thats how it all started for me. Doctors checked out my liver,and gallbladder also. I was also diagnosed with costrochondritis. Turns out it was Celiac all along. Sounds like you are on the right track. Hope you start feeling better. My rib pain is very intermittent now nowhere near like before.


Positive bloodwork

Positive biopsy

Gluten Free 10/2010

At the end of the game the Pawn and the King are placed in the same box.

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Thank you all for the support and encouragement! I'm so grateful for this site & everyone here... I no longer feel alone.


"It is not the strongest of the species that survive, nor the most intelligent, but the ones most responsive to change"

- Charles Darwin

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Left ribcage pain was my main symptom. I've been gluten-free since 9/1/10 and it is definitely better, but I still get the pain sometimes.


Positive TTG IGA blood test 8/13/10

Endoscopy confirmed 8/31/10

Started gluten-free diet 9/1/10

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Thank you all for the support and encouragement! I'm so grateful for this site & everyone here... I no longer feel alone.

Nope, you are not alone and you will feel better. :) Truthfully, the hardest part ( for me, anyway) is being patient to see the results. I have so many symptoms and I watch for each of them to improve...some have! I just want to be all better right now!! Who doesn't right??! ;) But the best advice I got was...relax, stick to the diet and eat whole, plain foods and keep asking for help as you need it.

Take care and feel better soon!! :)


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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