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healinginprogress

So Far, Soy...bad :(

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Wasn't sure where to put this topic because I kind of have a diagnosis based on a very positive blood test a few weeks ago, but I'm still getting the hang of things around here, so I hope it's ok.

I've been on the elimination for four days, days 2 to 4 I felt really good, barely any symptoms. So today (day 5), I decided to reintroduce soy. I had a bowl of edamame (steamed soy beans)..no soy sauce or anything, just a little salt.

It's about an hour later and I just had D, my stomach hurts, a little nauseous, and feel kinda "out of it".

I was really hoping that I would be okay with soy...but things aren't looking good :(

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Sorry that soy seems to be out for you also but you aren't alone and at least you are figuring it out fairly quickly in. It took me years and much thinking I was constantly being CC'd by gluten-free foods to realize that the ones that were getting me also had soy. I did do the Enterolab soy testing to confirm it but my body really was giving me the answer. Hopefully you will be over the reaction soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thanks to both of you! Yes, it is good I'm finding out early on, you're right. Since I had a reaction right away, I don't think it's necessary for me to have any more servings of it (I read you're supposed to have three servings of the food on the day of reintroduction and then back to the original diet for 4-7 days, noting any symptoms).

But, yeah, the unfortunate part is that I feel like crap and have no idea how long it will last. I took a sublingual B12 and am trying to drink lots of water. I heard that Benadryl might help but I'm not sure I want to take it, yet (any thoughts?).

I think newly diagnosed celiacs should be given a couple months of paid sick leave from work LOL It's really tough to go through this whole process and still be expected to function as per normal.

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Thanks to both of you! Yes, it is good I'm finding out early on, you're right. Since I had a reaction right away, I don't think it's necessary for me to have any more servings of it (I read you're supposed to have three servings of the food on the day of reintroduction and then back to the original diet for 4-7 days, noting any symptoms).

But, yeah, the unfortunate part is that I feel like crap and have no idea how long it will last. I took a sublingual B12 and am trying to drink lots of water. I heard that Benadryl might help but I'm not sure I want to take it, yet (any thoughts?).

I think newly diagnosed celiacs should be given a couple months of paid sick leave from work LOL It's really tough to go through this whole process and still be expected to function as per normal.

Yea I do agree that we should be able to get 'sick leave' or temporary disability if our symptoms are severe. You might want to talk to your doctor about it.

As to adding stuff when you do an elimination you need to add the item for a week OR until a reaction occurs. The reason for that is because it can take time for an intolerance to build up as explained to me by my allergist when he put me on an elimination diet. Obviously you have reacted and when a reaction happens you drop the item.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Yea I do agree that we should be able to get 'sick leave' or temporary disability if our symptoms are severe. You might want to talk to your doctor about it.

As to adding stuff when you do an elimination you need to add the item for a week OR until a reaction occurs. The reason for that is because it can take time for an intolerance to build up as explained to me by my allergist when he put me on an elimination diet. Obviously you have reacted and when a reaction happens you drop the item.

Awesome :) Thank you for clarifying!

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You are re-introducing soy pretty quickly (4 days). IMHO it would be better to wait several months before trying something with a known risk. In the meantime you could concentrate on adding foods (slowly) that you don't believe will sicken you. That way (if you are right) you are giving your body a good chance to heal and recover. Soy is one of the top 8 allergens in the USA so it is not a surprise if it bothers many people. Especially sensitive souls like us-en. (Insert batting eyelashes here). :)

You want to build up a list of foods you can eat safely early on.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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You are re-introducing soy pretty quickly (4 days). IMHO it would be better to wait several months before trying something with a known risk. In the meantime you could concentrate on adding foods (slowly) that you don't believe will sicken you. That way (if you are right) you are giving your body a good chance to heal and recover. Soy is one of the top 8 allergens in the USA so it is not a surprise if it bothers many people. Especially sensitive souls like us-en. (Insert batting eyelashes here). :)

You want to build up a list of foods you can eat safely early on.

I missed that you had only been gluten-free for that short a time. I agree with this. Give yourself a bit more time to heal. My allergist wanted me symptom free, at least as far as the D goes, for at least 2 to 3 weeks before I started adding stuff back in.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I do love edamame, but not so much that I would have to rinse it and shell it, etc. Besides..I love soy sauce, more...and I can't have that. LOL At some point I will try the tamari, though. Soy made me ill for three days. I'm going to wait longer this time before reintroducing something. It's just so tiring. NEED TO GIVE MYSELF TIME TO HEAL....ahhh yes...patience, patience, patience! I look back at it now and feel ridiculous for trying it so soon, I'm just anxious about all of it and want things to be better NOW haha PATIENCE...............

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