Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Lymes Disease Or Gluten Intolerance?


Pac

Recommended Posts

Pac Apprentice

When I was 13, I wanted my dr to test me for lymes disease. We lived in a high-risk area, I caught a pretty large collection of ticks during that summer and I was feeling exhausted for weeks, with high temperature, joint and muscle pain. It seemed quite a good guess. Not to the dr. He questioned me, then my mom alone, and then came with a conclusion that I'm psychotic and want the same disease as my father. We persuaded him to do the tests anyway, but when the results same in he just told us "everything's fine". Since then my health was going steadily down, I was searching for other possile causes and I kept hearing "it's all in my head" and "it's normal, get used to it". In 2009 I got diagnosed with gluten allergy, standard gluten-free diet helped but not fully. "Paranoid" gluten-free and rice-free diet seems to help but is not always possible (I keep getting sick after every shopping probably because of the bakeries inside stores). Today I took my medical record to my new employer's doctor for a rutine check-up and listing through it I found the 1995 "everything's fine" results:

Borrelia ELISA IgM ....... positive

Borrelia ELISA IgG ....... borderline positive

What should I do now (beside cutting that doctor to pieces and feeding him to our shelter dogs)? Should I try to get retested or is it too late? Could treating borrelia help with my extreme sensitivity to gluten? I'm just so frustrated right now. I was a typical adept for celiac since early childhood, I developed almost full list of lymes disease symptoms since 1995, I even tested positive for borrelia and still I get labeled as a head case?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

When I was 13, I wanted my dr to test me for lymes disease. We lived in a high-risk area, I caught a pretty large collection of ticks during that summer and I was feeling exhausted for weeks, with high temperature, joint and muscle pain. It seemed quite a good guess. Not to the dr. He questioned me, then my mom alone, and then came with a conclusion that I'm psychotic and want the same disease as my father. We persuaded him to do the tests anyway, but when the results same in he just told us "everything's fine". Since then my health was going steadily down, I was searching for other possile causes and I kept hearing "it's all in my head" and "it's normal, get used to it". In 2009 I got diagnosed with gluten allergy, standard gluten-free diet helped but not fully. "Paranoid" gluten-free and rice-free diet seems to help but is not always possible (I keep getting sick after every shopping probably because of the bakeries inside stores). Today I took my medical record to my new employer's doctor for a rutine check-up and listing through it I found the 1995 "everything's fine" results:

Borrelia ELISA IgM ....... positive

Borrelia ELISA IgG ....... borderline positive

What should I do now (beside cutting that doctor to pieces and feeding him to our shelter dogs)? Should I try to get retested or is it too late? Could treating borrelia help with my extreme sensitivity to gluten? I'm just so frustrated right now. I was a typical adept for celiac since early childhood, I developed almost full list of lymes disease symptoms since 1995, I even tested positive for borrelia and still I get labeled as a head case?

Hi Pac,

This is a response from CarlaB, who started the Lyme thread here--

and has a lot of experience and knowledge of the disease.

"That is definitely a positive result and that test is very likely to have a false negative. You need to find a doctor who is willing to treat Lyme Disease. Most doctors are not. Please see the trailer at Open Original Shared Link for an explanation of the political battle within the medical field regarding Lyme Disease.

To find a doctor willing to treat, the best resource is www dot lyme net dot org. You need to change that to the normal format with no spaces. There is a place on the board called "seeking a doctor". If you post there, someone will send you a list of doctors near you.

Severe gluten intolerance can be a result of Lyme Disease. If you don't have celiac disease, which I did not, the gluten intolerance may go away with Lyme treatment. Mine did."

  • 2 weeks later...
jldskier1234 Newbie

why is that??

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442

    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...