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My Story.: Step One Or Something Like That

RL2011

By RL2011
in Coping with Celiac Disease

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sb2178 Enthusiast
sb2178
Posted

Green's is good, and worth the $$. It's very much like the Belgian ales (Chimay and the like) that were my favorites. First one I've tried, as I love a good dry cider.

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RL2011 Rookie
RL2011
Posted
  • Author

More rambling about my gluten-free journey:

In the past 12 days I have not consumed any gluten. I noticed the past few nights that I have not slept much and while I have problems getting out of bed I have not felt totally exhausted during the day. Hope this doesn't last too long or I will have to run across the country like Forest Gump.

I have not been eating all that much (except for the evil cookies I made in the middle of the night the night before last) and continue to feel a little bloated. Not sure what to expect next regarding my energy level and my mood.

Last night I met a few friends out at a bar/ restaurant and while they ate I just had a glass of water and a Patron on the rocks. I imagine that eating out is going to be my biggest challenge. While I know that my gluten-free diet change with still drinking a little bit of tequila or wine is probably not wise for my gut I will not change that unless I see it causes further harm. I guess we all vary slightly in how we react to certain things physically or mentally beyond the certainty of the common immunological response to gluten.

I know that I will continue to kick this gluten diet stuff in the ass and that I will have a few setbacks along the way. All in all...I have continued to feel better day by day and as of this day my brain fog is pretty much gone.

My gluten-free life moves on...

notme Experienced
notme
Posted

More rambling about my gluten-free journey:

In the past 12 days I have not consumed any gluten. I noticed the past few nights that I have not slept much and while I have problems getting out of bed I have not felt totally exhausted during the day. Hope this doesn't last too long or I will have to run across the country like Forest Gump.

I have not been eating all that much (except for the evil cookies I made in the middle of the night the night before last) and continue to feel a little bloated. Not sure what to expect next regarding my energy level and my mood.

Last night I met a few friends out at a bar/ restaurant and while they ate I just had a glass of water and a Patron on the rocks. I imagine that eating out is going to be my biggest challenge. While I know that my gluten-free diet change with still drinking a little bit of tequila or wine is probably not wise for my gut I will not change that unless I see it causes further harm. I guess we all vary slightly in how we react to certain things physically or mentally beyond the certainty of the common immunological response to gluten.

I know that I will continue to kick this gluten diet stuff in the ass and that I will have a few setbacks along the way. All in all...I have continued to feel better day by day and as of this day my brain fog is pretty much gone.

My gluten-free life moves on...

your sleep will even out :) it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack a snack bag every time i leave the house. i was 5'8" and weighed 97 lbs. in 8 months i have put on 20+ lbs and haven't gone up a clothing size - all muscle replenishment. and butt lol now my pants stay up hahahahaaa you have an awesome attitude, btw - i don't know how the 'meek' deal with this...

RL2011 Rookie
RL2011
Posted
  • Author

your sleep will even out :) it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack a snack bag every time i leave the house. i was 5'8" and weighed 97 lbs. in 8 months i have put on 20+ lbs and haven't gone up a clothing size - all muscle replenishment. and butt lol now my pants stay up hahahahaaa you have an awesome attitude, btw - i don't know how the 'meek' deal with this...

Thanks for your kind words and since you are not single you are banned from describing how nice your butt is. LOL :)

color-me-confused Explorer
color-me-confused
Posted

Hey Jersey Girl! I have tried Redbridge and do not find it refreshing and crisp. The beer I have always liked are Heineken, Corona, Coors, and Guinness. If I cannot find a gluten-free beer similar to say Heineken Lite then I will look for a partner and buy or start a small craft brewery and do it myself.

Do you still live in NJ?

I know someone who is attempting to brew a gluten free IPA. He's an experienced brewer, I am looking forward to the results!

RL2011 Rookie
RL2011
Posted
  • Author

I know someone who is attempting to brew a gluten free IPA. He's an experienced brewer, I am looking forward to the results!

I would be interested in the end results of his efforts. We need some very good gluten-free beer!

RL2011 Rookie
RL2011
Posted
  • Author

I am not the best at following my own advice but why is it that I see/ hear many people faced with changes to their diet from celiac disease or gluten intolerance that they try to duplicate the poor diet they had before by eating gluten-free junk food/ deserts.

I had some gluten-free ice cream yesterday and made myself a promise that I will only allow one dessert per week for myself. I started and will continue to only eat basic whole foods and try to stay away from processed or junk foods except for my one a week dessert.

I am not trying to be mean to anyone here i just don't think all the talk about comfort foods is a good idea. I plan to eat minimal foods to sustain my life and not eat for social or other mental reasons.

I apologize in advance if my comments were too harsh for anyone.

I was going to post this in another thread but I did not want to offend...

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    • xxnonamexx
      Breakfast ideas besides oatmeal as Avenin can be gluten?

      By xxnonamexx · Posted

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
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      The Struggle Has Overtaken Me

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      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
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      The Struggle Has Overtaken Me

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    • Aretaeus Cappadocia
      Gluten challenge - Need some guidance

      By Aretaeus Cappadocia · Posted

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
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