Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

More Questoins About Possible Rheumatoid...


NorthernElf

Recommended Posts

NorthernElf Enthusiast

I had asked about arthritis issues a few months ago. I deal with cold Canadian winters...starting around New Year's I began to have symptoms of hand/wrist/elbow pain...deep ache...one shoulder...it recurred every 2-3 weeks, got real bad in March when we went down to Vancouver island (very wet, rainy weather)...and then abated, went away.

Fast forward to now - we have been on rainfall warnings, up to 70 mm the last couple of days, imminent flooding, etc. My joints are aching so bad ! I can't believe it - I have been feeling "normal" but now my hands, elbows, knees & ankles ache. I am a very active person, very active - maybe I have been ignoring discomfort, blaming it on my activity but that deep ache is not consistent with what I do (I teach fitness too). Yesterday I went for a run & my HANDS really hurt....makes no sense.

I am tired too - wanna lie down & curl up in a ball...blame the weather right ? But what gives ? I did have a blood test back in January - RA negative. My knuckles on my hands - first 2 - swell a little, worse on my right hand (dominant hand). Had an xray in January - looked normal. I *think* my index finger is starting to bend in...hard to tell.

Anyway....wanna know if anyone else has a similar issue. I thought the whole thing went away...but wow, back witha vengence...pain is weird - can handle it for awhile but then it grates...gets very upsetting....

Any input is greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Northernelf,

I'm sorry you feel so bad. I have RA and I know what you're going through. Have you eliminated the nightshade vegetables? They are not good for anyone who has arthritis issues and you definitley sound like you do.

Please take them out for a few weeks and see how you feel. Potatoes, tomatoes, all bell peppers, eggplant, tobasco sauce, tomatillos, okra. I hope this helps.

fairydust81 Rookie

Hi there,

I'm a scientist researching RA and even though your bloods are negative it's still possible to have "seronegative" RA. but there is a classification system that rheumatologists follow to aid in a diagnosis. This includes morning stiffness, multiple joint swelling, changes on xrays, presence of nodules, positive rf factor in the blood etc. You have to fulfil so many of the points and been suffering constantly for 6 months at least.

There is another condition that has similar symptoms to RA but doesn't cause the joint damage and it also flares and goes periodically. It's called palindromic rheumatism (a condition I was diagnosed with in January). I get all the joint pain and swelling in flares and I also have visible arthritis on my xrays. I'm now taking anti rheumatic drugs to help

  • 2 weeks later...
Neshema1 Newbie

Dxd w/ celiac at abt 13 mos, juvenile RA at age 9, later sjogrens syndrome & raynauds (related to RA), & then neuropathy, & then u name it.. Now dysautonomia (neurological). BUT, was of gluten-free diet most of my life after docs decided at around age 4 it was pancreatic enzyme deficiency (trypsin) which now know can happen secondary to celiac disease, so been poisoned by gluten for most of my life. Antibodies came out neg being in immmune suppressant drugs for RA. I was RF neg.high sed rates. Many ppl are seronegative. Ive had it so long & was active in arthritis foundation & saw it all the time. My ANA SSA/ssb recently was worst ever, pos for lupus AND sjogrens. Get a good rheumatologist who believes u, know relationship between gluten & RA & knows tests don't always tell the story until later, if ever. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442

    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...