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Reneek Kaur

Celia Disease

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Hi,

My daughter has now been diagoised with Celiac disease for nearly 2 years now and still her tummy is big and always bloated, she is on a full Gluten free diet but still she's going to the loo at least 4 times a day. My concern is that something is not right as she has not put weight on for nearly a year now and has grown slightly. We have seen the consultant and mentioned all this to him, which he has now come back and told us that there may be contempmiation fear in some of the foods which we are given.

We are Sikhs of origin so curries are part of our diet every day, after doing so much research am still struggling to cope with my daughter problem, is there help out there.

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She may have another food sensitivity as well. Try to keep a record of everything she eats and see if there's something that sends her running to the loo? Also, even trace amounts of gluten can cause problems, so be very careful in that regard.

I hope you find some answers for your little girl. It's so hard to watch our little ones have problems.

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Is the doctor going to do any further testing? A Gastro doc would probably do a follow up scope. An allergist immunologist would do testing to see if there is an allergic reaction.

If so if you can keep things "normal" during the testing.

If you have to go about this all on your own. Keep the food journal, and include all information. We had to remove all top 8 allergens (wheat, eggs, fish, shellfish, soy, milk *all the way down to casein, nuts, peanuts and peas along with the gluten free diet to find which things were triggers for Eosinophilic Esophagitus. We had to eliminate everything and only add back one allergen at a time. We then had to wait for the reaction and in this case of eosinophils the reaction can stay activated for 12 days with no further allergen exposure.

At 2 years of age is likely from the Celiac she has PICA (low iron levels causing cravings to eat non food items). Search through the house and see if there is are any signs of eaten drywall, pet food, paper/cardboard. Go through personal hygeine products yours and hers. At 2 kids are sticking a lot of things in thier mouths.

Good luck. The best thing to do is start back at the doctors. She should have been going in for yearly check ups with a pediatric gastroenterololgist since she was diagnosed with Celiac.

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