Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gluten Sensitivity?

hojo70

Recommended Posts

hojo70 Newbie
hojo70
Posted

Hi folks. I've had problems with anxiety and random nerve pain throughout my body for 9-10 years. The pain is not constant, but is worse some days than others. I was tested for celiac by a gastroenterologist maybe 6-7 years ago but the result was negative. I was wondering how likely you think gluten sensitivity may be? Can it affect (only) the nervous system this way? Has anyone else had the same experience, or heard of someone who has?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


next2normal Newbie
next2normal
Posted

Hi folks. I've had problems with anxiety and random nerve pain throughout my body for 9-10 years. The pain is not constant, but is worse some days than others. I was tested for celiac by a gastroenterologist maybe 6-7 years ago but the result was negative. I was wondering how likely you think gluten sensitivity may be? Can it affect (only) the nervous system this way? Has anyone else had the same experience, or heard of someone who has?

yep for sure, a test for celiac is omly one isse of the 200+ issues.i wont rant what i think of doctors and this issue,

anyway ask for a anti gliadin IGG and IGA test

its a soft tissue issue, which means a lot to everything

Lisa Mentor
Lisa
Posted

Hi folks. I've had problems with anxiety and random nerve pain throughout my body for 9-10 years. The pain is not constant, but is worse some days than others. I was tested for celiac by a gastroenterologist maybe 6-7 years ago but the result was negative. I was wondering how likely you think gluten sensitivity may be? Can it affect (only) the nervous system this way? Has anyone else had the same experience, or heard of someone who has?

Well, testing has advance in recent years. I would consider retesting. And after that, try the full diet and see if you have symptom relief.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Well, testing has advance in recent years. I would consider retesting. And after that, try the full diet and see if you have symptom relief.

I agree. Even though you were negative 6 yrs ago you could show up positive now. I would get new tests and make sure they do a full panel before going gluten-free. All the tests listed here: Open Original Shared Link

AVR1962 Collaborator
AVR1962
Posted

Yes, nerve issues a very much a part of it. This is what first appeared to me as bothersome symptoms. It doesn't hurt to retest. If tests are still negative then maybe try a gluten-free diet anyway. I had to do alot of supplementing. My body was pretty damaged, so the point of bone loss and I was not absorbing the proper nutrients from foods alone. I have been gluten-free for 6 months, vit supplementing for 3 months. For me, it was the extra vits that have made a difference in my recovery. The process is slow.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...