Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gluten "attack" Without Eating Gluten?

caffadeus

Recommended Posts

caffadeus Newbie
caffadeus
Posted

I've been eating the same foods, day in day out, for about a month now since I've been gluten free. Everything that I eat has passed the test of not giving me any symptoms. So for fear of being "glutened", I eat the same thing everyday. In doing this, I've gotten better everyday for the month that I've been gluten free. Since my start date of September 13th, I have more energy, decrease in muscle spasms, mental ability started to come back, eyesight and concentration returned, backaches and headaches gone.

Until yesterday.

I ate the SAME thing I always eat, but for some reason, I had an attack that I use to have in my pre-gluten days. The "episode" or "attack" included feeling dizzy, inability to find the words I'm looking for, backache, focus and concentration lost, muscle spasms fiercely returned, and most of all I became EXTREMELY fatigued. The symptoms happened immediately after I went to the bathroom (a number 2). They continued through the night and I still feel them today.

Does anyone know what could've possibly happened? Has anyone else experienced symptoms after going gluten free, but did not recently eat any gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

I've been eating the same foods, day in day out, for about a month now since I've been gluten free. Everything that I eat has passed the test of not giving me any symptoms. So for fear of being "glutened", I eat the same thing everyday. In doing this, I've gotten better everyday for the month that I've been gluten free. Since my start date of September 13th, I have more energy, decrease in muscle spasms, mental ability started to come back, eyesight and concentration returned, backaches and headaches gone.

Until yesterday.

I ate the SAME thing I always eat, but for some reason, I had an attack that I use to have in my pre-gluten days. The "episode" or "attack" included feeling dizzy, inability to find the words I'm looking for, backache, focus and concentration lost, muscle spasms fiercely returned, and most of all I became EXTREMELY fatigued. The symptoms happened immediately after I went to the bathroom (a number 2). They continued through the night and I still feel them today.

Does anyone know what could've possibly happened? Has anyone else experienced symptoms after going gluten free, but did not recently eat any gluten?

Yes...many of us have problems with secondary food intolerances. The protein in soy, dairy, and corn can commonly be a problem. Six weeks after going gluten-free I had to cut out soy because I started reacting to it in the same way I did with gluten. Then dairy. Shortly after, I couldn't tolerate corn.

I'm tolerating dairy again now. Those are the most common problem foods, but it could be something else too. I finally went for allergy testing and it ended up that I was allergic to pecans, which was an ingredient in a gluten-free/SF/DF bar I was eating occasionally. The first year or so is a challenge!

Good luck, hope you figure it out and feel better soon!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

About 3-4 weeks gluten-free I found I was reacting to soy. I guess a lot of us find out we have secondary intollerances once the gluten gets out of our systems?

Also consider..you may have been "glutened" by touching something a gluten eater touched and it got into your system? Touching a shopping cart, handling money, door handle, ATM buttons, the list goes on and on. So many people go through their daily routines munching away as they do things, that it's easy to get "dosed".

I hope you feel better fast!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442
    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...