Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

livelifelarge24

Does Dh React Only To Topical Gluten Or Ingested Gluten As Well?

Recommended Posts

I have been gluten free for five months and have never felt better. However I have a DH outbreak on both sides of my neck that I have not been able to get rid of. I realizes my hairspray had gluten in it so I replaced that. As far as I know I am using absolutely no gluten products except eyeshadow. Does te rash only flare upfrom topical glutting or does accidental ingestion cause it? I think this flared up about the time I last accidentally got glutened. Or will it just take longer for my skin to heal? I'm sorry I feel like I don't understand a lot about the skin part of my condition.


"A man too busy to take care of his health is like a mechanic too busy to take care of his tools." - Spanish Proverb

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Have you tried avoiding iodine? Many of us with DH cannot control outbreaks without eliminating iodine as much as possible. Iodine can be found in iodized salt, some dairy products (especially soft cheeses), seafood, salty foods like french fries and chips and nuts, and asparagus. It appears to take BOTH gluten and iodine together to cause a flare-up of DH. Many of us have discovered that if we eliminate iodine, our flare-ups are less severe when we're accidentally glutened. After you've been gluten free for a while, you might not break out anymore regardless of eating something with iodine in it. Because you need iodine (small amounts), you'll need to ultimately add it back into your diet.

Share this post


Link to post
Share on other sites

DH is definitely related to ingestion of gluten. Whether it is related to topical contact is a subject for debate.

Iodine is a factor in the management of DH. While it will not, of itself, trigger the reaction, it is understood that the reaction will be more severe in the presence of iodine.

Dietary sources of iodine include commercially prepared iodized salt, and ocean products including both fish and seaweed (eg. kelp).


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

Share this post


Link to post
Share on other sites

Google "thyca" for a list of high-iodone goods to avoid.

If you have enough iga in your skin, if it meets enough iodone...you'll probably get a rash.

Just because it's topical, doesn't mean it doesn't hit a mucus membrane and get in.


Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.

Hashimoto's DX 2005.

Gluten-Free since 6/2011.

DH (and therefore Celiac) dx from ND.

Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

Share this post


Link to post
Share on other sites

Thank you so much! I did not know about the iodine. Ive always considered myself lucky that I only had one unbearable severe skin reaction back before I knew I had celiac. This is gettig really annoying though.


"A man too busy to take care of his health is like a mechanic too busy to take care of his tools." - Spanish Proverb

Share this post


Link to post
Share on other sites

This seems a little overwhelming now, all of the iodine foods to avoid on top of gluten :/ I really try not to get discouraged but it seems like it just got really hard again!


"A man too busy to take care of his health is like a mechanic too busy to take care of his tools." - Spanish Proverb

Share this post


Link to post
Share on other sites

The dairy (if you aren't already) is tough.

Carageenan is a pain, but as long as you're off dairy it's doable. Don't try to find a milk substitute. All of them have sea salt and/or carageenan except one hemp milk...and btw it was gross. I used a few pads of butter in egg whites and was fine.

Egg whites are fine to sub for eggs (but I am sooo tired of them now - just reintroduced whole eggs and am soooooo happy).

Potatoes got me in the beginning, even without skins.

I stuck to nuts, nut butters with honey for quick snacks. And I ate my weight in Junior Mints. They are dairy and gluten-free and egg free so if you can tolerate them (no other issues), LOAD UP. I also ate Ghiradelli chocolate chips and Talenti raspberry sorbet like mad. You need a crutch....

I did hard core low iodone for 2 weeks (after gluten-free for 2 months) and that worked to clear it up. Since you've been gluten-free a while you may be as lucky as I was. Also, toss out iodine containing skin care. That was painful and expensive - lots of seaweed and carageenan there.

I am now (after 2 months) eating a mostly normal (except gluten) diet. I eat seafood in moderation, eggs, potatoes, dairy. No sea salt or iodized salt yet. No sushi fest. Just go slow reintroducing.....

Good luck!


Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.

Hashimoto's DX 2005.

Gluten-Free since 6/2011.

DH (and therefore Celiac) dx from ND.

Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

Share this post


Link to post
Share on other sites

Google "thyca" for a list of high-iodone goods to avoid.

If you have enough iga in your skin, if it meets enough iodone...you'll probably get a rash.

Just because it's topical, doesn't mean it doesn't hit a mucus membrane and get in.

especially around something so sensitive as the eyes. I suggest you try Afterglow or some other gluten-free eyeshadow


Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

Share this post


Link to post
Share on other sites

This seems a little overwhelming now, all of the iodine foods to avoid on top of gluten :/ I really try not to get discouraged but it seems like it just got really hard again!

Try just avoiding iodized salt, iodine in vitamins and seafood that is high in iodine first. That was all it took for me and my DH was quite severe.

After you have been gluten free and DH outbreak free then do try adding iodine back in as it is an important nutrient.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites