Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

AndreaR

Reaction To Dairy Substitutes

Recommended Posts

Does anyone have a reaction to the milk substitutes? I get pins and needles from soy, almond, and coconut milks. Haven't tried rice or hemp yet. Does anyone getthis type of reaction? I am lactose intolerant and also get the pins and needles from dairy products and some fruit. I am almost 4 months on a gluten free diet. I would like to find a good dairy substitute for baking and for breakfast cereal. Thanks for any explanation or ideas.

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


What do all of those substitutes have in common? Read the ingredients list.

Have you considered salicylate intolerance?


Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.

Hashimoto's DX 2005.

Gluten-Free since 6/2011.

DH (and therefore Celiac) dx from ND.

Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

Share this post


Link to post
Share on other sites

Hi Andrea, and welcome to the forum.

I had neurological reactions (and still do if I get CC) before all of the other symptoms stepped in.

The only milk (I tried them all) that I could tolerate was coconut milk, but from a can, and one that didn't list any additives. I actually made my own coconut milk once too, that was a major pia. Once you give your gut a chance to heal, you may be able to tolerate dairy again.

For me, that took over a year, which seems like a really long time, but there are some great bloggers that make it easier (and interesting) to be gluten-free DF. (Coffee is going to be tough on you for awhile, maybe try green tee until your gut starts healing.)


Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

Share this post


Link to post
Share on other sites

check the substitutes are dairy free and gluten free, also soy may be an issue if you have dairy issues

rice milk is good, if you use it for baking you may need to add a tiny bit more fat to the recipe as there is a lot less in rice milk than regular dairy

our daughter is celiac and has anaphylaxis towards milk in any form, we use silk soy and almond milk and have never had an issue

so delicious coconut milk beverage is gluten and dairy free and very tasty, our daughter would drink it all day! It has fat so will replace the fat you miss out on from dairy, and is fantastic in baking, rice is better for savoury thing though

Share this post


Link to post
Share on other sites

Sub dairy has additives that are worse than dairy itself. I would be watching for carrageenan, any gum, and if you are soy sensative then that of course too. I tried many but I cannot tolerate carrageenan or the gums and actually found I did better by taking a lactose aide and using actual milk.


Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

Share this post


Link to post
Share on other sites

Many of those (including the store bought dairy) contain the added vitamin A or D. There are multiple studies showing problems with synthetic vitamin D, plus I have an acquaintance who can't tolerate any synthetic vitamin D.


Undiagnosed for 20 years since first symptoms.

March 2009 - Negative Blood work

April 24, 2009 - Gluten-free

April 29, 2009 - Notably positive response to gluten-free Diet.

May 2, 2009 Dairy Free

May 6, 2009, Soy Free

May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8

June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)

June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.

July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)

August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

Share this post


Link to post
Share on other sites