Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Pretty Sure This Is Negative Results But Please Take A Look


MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast

for my almost 14 year old son.

(DGP IgG) 0.7 range <4.9

(DGP IgA)<.1 range <6.1

(TTG IgA) <.1 range <10.3

(EMA IgA) negative

total serum IgA 17 so from some emails last year(I had saved them) Dr. Guandalini says that an IgA of 20 or above is not considered IgA deficient...so going by 17 this would be considered defecient?? ages 3-13 range is 41-395 and ages 13 to adult range is 44-441

looks like he had some gene testing done

DQ2- DQ8- increased risk <0.1x relative risk extremely low

food allergy panel came back

milk(flagged high)

peanuts(flagged high)

wheat(flagged high)

all the other stuff he was right at the range given so like for egg white his results were <.35 and the range is <.35

so any comments any advice?? our next appointment isn't for a few weeks and the nurse told me not to read too much into this. the food allergy results make total sense, drinks lots of milk, eats pband j for lunch on wheat bread everyday....

oh and just in case, my ds ismoody/figure itmight be hormones though, very thin think stick thin, no body fat(doc even notes 0% body fat on his medical chart) constipation, redness under his eyes, low iron. thanks again for any help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

With an IgA of 17 and a range of thirteen to adult 44 - 441, your son is IgA deficient (and even with Dr. Guandalini adjusting the range to less than 20, he is still under.) This means to me that his IgA testing is not valid and they need to do the IgG versions. His symptoms certainly sound spot on for celiac. Is there any way of getting retesting sooner with the IgG versions? Ask the nurse.

Skylark Collaborator

What shroomie said. He needs TTG-IgG and EMA-IgG. He needs to continue eating wheat for valid testing so you might want to call and see if they can arrange the labs sooner.

MoMof2Boyz Enthusiast

ok, thank you both, I will ask for those versions of the test.

can someone tell what the difference between these are? (the IgG compared with the IgA thanks!)

Skylark Collaborator

They are different types of antibodies. Your son doesn't make enough IgA for the tests to be valid, whether or not the doctor decides to diagnose him as IgA deficient. That means he needs the IgG version of the test.

MoMof2Boyz Enthusiast

Hi everyone! Just one more question, if my son's DGP IgG is positive(but not a very high positive) would that indicate celiac?

Skylark Collaborator

Yes, that would indicate celiac. DGP-IgG is very specific.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MoMof2Boyz Enthusiast

Yes, that would indicate celiac. DGP-IgG is very specific.

Really?!! In your opinion, is a DGP IgG of 0.7 range <4.9 a positive? just trying to understand this all better.

thanks!

Skylark Collaborator

Really?!! In your opinion, is a DGP IgG of 0.7 range <4.9 a positive? just trying to understand this all better.

thanks!

Sorry, I thought you were asking theoretically or maybe about someone else's test. Your son's test is not positive at all. It is negative, and low-negative at that. 0.7 is considerably below the 4.9 cutoff.

MoMof2Boyz Enthusiast

Sorry, I thought you were asking theoretically or maybe about someone else's test. Your son's test is not positive at all. It is negative, and low-negative at that. 0.7 is considerably below the 4.9 cutoff.

thanks, sometimes this stuff can be hard to understand :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...