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Going To The Docs Today

ashnyaya

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ashnyaya Newbie
ashnyaya
Posted

I am a new member here. Before posting i have read alot of the post on these boards and they are extremely helpful. I was so frightened when my doctor said the words "celiacs disease". I was going to the doctor originally because i had bloody stools and stomach pain with bloating and constantly having bowel movements after everything i eat. So I had an endoscopy and colonoscopy. Colonoscopy was fine but the biopsies from the endoscopy showed possible celiacs disease. My doctor ordered me to have a capsule endoscopy ( the weirdest but really interesting). The results from that showed my villi were extremely damaged. So the doctor ordered me to have the blood test done. So, now to the point, I go to the doctor today to find out the results from my blood test. I have been doing alot of research on here so i think I have prepared myself a little, but I am still a little nervous. I am 27 and female and have a big, extremely italian family. This will be a lifestyle change for me. I guess I will have to start bringing my own food to family gatherings because i know they will look at me insane if I try to change family recipes.

Ok I am rambling on. But my point was that I am new to this and could really use some advice, words of wisdom, and whatever you think would help me out!

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Metoo Enthusiast
Metoo
Posted

I am a new member here. Before posting i have read alot of the post on these boards and they are extremely helpful. I was so frightened when my doctor said the words "celiacs disease". I was going to the doctor originally because i had bloody stools and stomach pain with bloating and constantly having bowel movements after everything i eat. So I had an endoscopy and colonoscopy. Colonoscopy was fine but the biopsies from the endoscopy showed possible celiacs disease. My doctor ordered me to have a capsule endoscopy ( the weirdest but really interesting). The results from that showed my villi were extremely damaged. So the doctor ordered me to have the blood test done. So, now to the point, I go to the doctor today to find out the results from my blood test. I have been doing alot of research on here so i think I have prepared myself a little, but I am still a little nervous. I am 27 and female and have a big, extremely italian family. This will be a lifestyle change for me. I guess I will have to start bringing my own food to family gatherings because i know they will look at me insane if I try to change family recipes.

Ok I am rambling on. But my point was that I am new to this and could really use some advice, words of wisdom, and whatever you think would help me out!

Welcome!

Well, keep in mind the blood tests have a 30% false negative rate, so as my doctor said, if you have 100 celiacs in a room, it will only identify 70 of them...the other 30 would have a negative blood test for celiac, even though they have it! So no matter what your blood test, you should go probably try gluten free.

BabsV Enthusiast
BabsV
Posted

Ok I am rambling on. But my point was that I am new to this and could really use some advice, words of wisdom, and whatever you think would help me out!

Welcomes! You've come to the right place for support, information, recipes, pep talks, a chance to vent when you need to, etc.

Check out this stellar post, on the "Coping With" forum...wish I'd seen this right after my diagnosis. It would have made life soooooo much easier/better.

ashnyaya Newbie
ashnyaya
Posted
  • Author

Thanks for the kind words. My results from the blood test came back positive. So i am finally officially diagnosed. The doctor was no help though he just gave me pamplets and said be on a glueten free diet and see ya in a year lol! Thank goodness this forum is so helpful.

mushroom Proficient
mushroom
Posted

Welcome to the club no one wants to join. I hope we can make your time here pleasant and informative.

You do have a lot of reading to do, though. On here you will find help about deglutenizing your kitchen and cookware, who not to kiss and when :D , how to deal with family and friends, and a zillion and one things that may pop up. Feel free to pose questions whenever you can't find an answer, and vent away -- we have been down the path and we will sympathize. :) Starting with, the doctor's reaction was totally normal. Most of them know little about nutrition so there's not much point in their pretending they do.

MitziG Enthusiast
MitziG
Posted

Yes, welcome! Hope your new lifestyle will have you feeling better soon! If your family loves to cook, they can be a great asset in helping you make gluten free substitues for the pasta and bread they traditionally serve. Expect a lot of duds in the beginning though- gluten-free cooking definitely has a learning curve! You don't have to give up the foods you love- but you will lose a lot of convenience, and that takes some getting used to!

ashnyaya Newbie
ashnyaya
Posted
  • Author

I need some advice on degluetenizing my kitchen. Any advice is helpful!

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ashnyaya Newbie
ashnyaya
Posted
  • Author

Welcome to the club no one wants to join. I hope we can make your time here pleasant and informative.

You do have a lot of reading to do, though. On here you will find help about deglutenizing your kitchen and cookware, who not to kiss and when :D , how to deal with family and friends, and a zillion and one things that may pop up. Feel free to pose questions whenever you can't find an answer, and vent away -- we have been down the path and we will sympathize. :) Starting with, the doctor's reaction was totally normal. Most of them know little about nutrition so there's not much point in their pretending they do.

Wait, I can get glueten from kissing someone? That is so weird. I definately need to do some research!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I need some advice on degluetenizing my kitchen. Any advice is helpful!

It seems like we get more sensitive to gluten once we're off it for a while, so take the time now to go through your spices and seasonings, condiments in the fridge, etc. Get rid of anything with gluten. Then wash down anywhere you've had gluten stored or used.

I didn't have the energy to wash down shelves and cabinets when first Dxed.

I just did it and got a real strong gluten reaction.

Be sure to check any medications or supplements, change your toothbrush, clean or replace your can opener.

Check out IH's gluten 101 list. There's tons of helpful hints there.

Good luck to you..and best wishes for good health. :D

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