Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

New, Help With Symptoms

brookies

Recommended Posts

brookies Newbie
brookies
Posted

Hi all. I just signed up and this is my first post. I'm wondering if I have Celiac symptoms. I have read through much on the site already but am still unsure where I fit. Let me preface by saying that I am 31 years old and have had a life long eating disorder of binge eating. I have recently been getting help for it and was starting to pay close attention to what I eat. I was starting to suspect my toddlers and I have milk allergies and possible sensitivities to grains and/or gluten. I have never been able to control myself around them. About 2 1/2 weeks ago, I tried to eliminate dairy and grains from my diet. It went okay, but some days in recovery are better than others and I would slip. And some days, grain-free felt too hard and I just went gluten free. Other wise I have eaten (gorged on) grains and gluten my entire life.

2 weeks ago, I had what felt like an upset stomach all morning but then it progressed to real intense pain on my left side that required medication and a heating pad and while the initial intensity went away after a few hours, a dull pain came and went for a few days. I had also noticed blood in my urine but went to my OB thinking the pain might be an ovary. Ultrasound came back fine. He thought maybe I had passed a kidney stone since there was a "significant" amount of blood in my urine. The pain was gone for 10 days (mainly trying to avoiding gluten and dairy but not perfectly). Then it returned last night. It varies from really intense on my left side to a dull cramp in my lower abdomen. I am going to call my GP, but was hoping for some help from this forum.

Here are symtoms so far:

blood in urine

intense cramping on left side with nausea at times

dull cramping lower abdomen with nausea at times

occasionally mousy and loose stools

somewhat frequent diarrhea

occasionally gassy

eczema

frequent headaches, lower back pain, and fatigue

So I am just wondering if these are enough symptoms to suspect Celiac or if I am off base? Could I have been eating gluten my whole life and now all of a sudden have an intense reaction to it? Any advice you could give on talking to my doctor about my symptoms and what kind of testing I should ask about if celiac disease may be possibility, I would really appreciate it. Also, should I do my best to be strict about a gluten-free diet to see if my symptoms improve or keeping eating it for any testing. Thanks in advance for the support.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi Brook. Welcome to the forum!

All I can say about your symptoms is that getting that appointment at your GP is a great idea. Someone else may have some more ideas for you.

Good luck!

brookies Newbie
brookies
Posted
  • Author

Thank you. I have an appointment with my GP this morning. Need to keep reading so I feel informed when I go in to see him.

Hi Brook. Welcome to the forum!

All I can say about your symptoms is that getting that appointment at your GP is a great idea. Someone else may have some more ideas for you.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...