Surprised By The Test Results, And A Little Confused

[Whitewall]

I have been fighting with doctors for about 4 years on behalf of my daughter, Hannah (now 9). I have been convinced all this time that she had Celiac Disease but no doctor seemed to care. Her GI doctor said (when she was 5) that she had IBS and would live in pain the rest of her life and that's just the way it is. The allergist only offered to do a blood test (when I insisted she needed to be check) and of course, with the high false negative rate, it came back negative.

We just got results back from Enterolab and I was not surprised to see the positive result on the gluten test but I was a little surprised by the rest of her results, positive for milk, egg, and soy sensitivity. Here were her results:

Fecal Anti-gliadin IgA 126 Units (Normal Range is less than 10 Units)

Fecal Anti-casein (cow

[Lfrost]

From what I understand, IgE antibodies are what are called 'true allergies'. These allergies cause immediate reactions and at their worst can cause anaphylactic shock.

IgA and IgG antibodies show food sensitivities. These reactions are not immediate and can take up to 3 days to develop. Here are some references that I found:

Open Original Shared Link

Open Original Shared Link

Your doctor probably ran an IgE allergy panel on your daughter.

Also, the food allergy tests that were run here look like they were testing specifically the proteins in the food.

I hope this helps!

[StephanieL]

. The allergist only offered to do a blood test (when I insisted she needed to be check) and of course, with the high false negative rate, it came back negative.

We just got results back from Enterolab and I was not surprised to see the positive result on the

Actually a negative test result for true IgE allergies is about 90+% accurate. A positive (meaning yes, they have an allergy according to the test) is only 50% accurate.

[Takala]

It means, that, instead of "fighting" with doctors who don't get the whole food intolerance/allergy thing, you instead take charge of the situation, and eliminate the problem causing foods from the diet. That is gluten, and soy, casein, and egg. And you replace them with whole, natural foods and less processed junk, and you keep a food diary, logging in everything she eats and that goes in her mouth, such as toothpaste, medications, etc.

An allergy is different than an intolerance, in that it does not cause such a quick and severe reaction- but the food is still bad for you, and makes you sick.

After you have what should be successful results, by diet changes, you can, in the future, after symptoms go away, do a "challenge" unless it is a type of severe allergy that causes anaphylactic reactions, in which case, that's a permanent "no- go" for that item. That bad, severe allergy, should only be done in a doctor's office under strict supervision, as a different test than eating it. This food challenge means you re introduce ONE item at a time, and carefully observe the results. A reaction gives you your answers.

Don't be surprised if the ability to not handle soy (in most forms) is permanent. Some can handle small amounts of soy lecithin or fermented soy as in pure soy wheatless tamari sauce, others can not. But this goes with the gluten intolerance. Some also regain ability to handle some dairy, as long as it is lactose free, like good yogurt or hard, aged cheeses. But don't mess around with eggs. Egg reactions can be severe. This may be, or not be, permanent.

[Michelle1234]

I'm not a medical expert so cannot tell you what to do. But in my own personal experience I developed a bunch of food allergies after being gluten free for 5 yrs. I saw a good holistic Dr. who did some expensive test and determined I had an internal yeast infection along with not enough of one strain of probiotics. After 3 mths of not eating all the food allergy items (including milk, egg, meats, veggies, fruits, nuts) and taking the supplements I can eat all the foods again with no problems. If your daughter has been eating gluten for the last 4 years while she has had problems with it she may have developed pretty sever other gut complications. I don't bother fighting with Drs. If they can't help I accept their limitations and move on until I find someone who can provide some assistance with my situation. In my case it was a holistic medical Dr who practices both eastern and western medicine.

[cyberprof]

I have been fighting with doctors for about 4 years on behalf of my daughter, Hannah (now 9). I have been convinced all this time that she had Celiac Disease but no doctor seemed to care. Her GI doctor said (when she was 5) that she had IBS and would live in pain the rest of her life and that's just the way it is. The allergist only offered to do a blood test (when I insisted she needed to be check) and of course, with the high false negative rate, it came back negative.

We just got results back from Enterolab and I was not surprised to see the positive result on the gluten test but I was a little surprised by the rest of her results, positive for milk, egg, and soy sensitivity. Here were her results:

Fecal Anti-gliadin IgA 126 Units (Normal Range is less than 10 Units)

Fecal Anti-casein (cow

[GFinDC]

She may stop reacting to those other foods after she has been off them for a while and off gluten also. When the gut is irritated it isn't happy with lots of things we throw at it. Her immune system may be in hyperdrive attacking anything and everything that looks a little bit suspicious. But that may settle down on gluten-free. The thinking I have read before is to stay off the suspect foods for 6 months before trialing them again. That is assuming she is doing well in 6 months though and not having continuing problems. There are several threads on the forum about allergies (IgE) toning way down after people went gluten-free. And some people can tolerate foods that bothered them after a while. The most common example cited is lactose intolerance, where the villi grow back and the lactase enzyme is again produced.