Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Biopsy Done Yesterday

GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

So my GI doctor did an EGD on me yesterday, and he said that all of the slides looked normal (my esophagus and stomach weren't inflamed, and my duodenum wasn't visibly damaged), but that celiac is a microscopic diagnosis, so we're waiting for the results of the actual tissue biopsies. Will the fact that my duodenum isn't scalloped affect whether or not my villi are damaged?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

So my GI doctor did an EGD on me yesterday, and he said that all of the slides looked normal (my esophagus and stomach weren't inflamed, and my duodenum wasn't visibly damaged), but that celiac is a microscopic diagnosis, so we're waiting for the results of the actual tissue biopsies. Will the fact that my duodenum isn't scalloped affect whether or not my villi are damaged?

Duodenal scalloping is seen with severe villi damage. If you don't have it, it may mean that your damage isn't bad? It doesn't mean you don't have Celiac, or gluten intolerance. If your biopsies show no damage, that's good news! However, you could still be gluten intolerant, it just isn't causing an immune reaction. The treatment is the same...no gluten. :(

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Yeah, my thought process is that I was gluten free for 18 months and only went on gluten again 2 1/2 months ago. So it probably isn't as "severe" as it would have been if I'd been eating it all my life. Plus I'm only 18, so there's hardly been time for long term damage. I thought I saw some odd mucosal patterns (also seen in celiac patients) but it could have been just the quality of the image. Not to mention, my GI doc said the diagnosis really depended on the villi biopsy, and I wouldn't be able to see damage. I think I am dealing with some sort of autoimmune disorder (just given medical history) and honestly, I would rather it be celiac because then I know what it is and how to treat it, instead of starting the long and frustrating diagnostic process all over again.

mamacat Rookie
mamacat
Posted

My dr. didn't see visible damage on me either with an endoscopy but saw damage under the microscope which gave me the Celiac Dx. You never know until they see it up close- the devil is in the details. ;)

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted
  • Author

Right...I'm concerned because I believe he only took one biopsy from my duodenum. Gah. I'm nervous. I'd hate for him to not diagnose me celiac because he biopsied the wrong patch of my intestines. But thanks for the feedback!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...