Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Afraid To Be Turned Away...again


Sapphire00

Recommended Posts

Sapphire00 Newbie

Brief History?

I found out I was hypoglycemic at age 10. My mother baked horribly so I didn't eat much of her breads. Even though they were all whole wheat and honey. I got married at 19 and we used to eat french bread all the time. That's when the bloating started. I was always really skinny...but after than, I started getting the bloated tummy and bad constipation.

In my 20's it got really bad. I was gaining 5 pounds a week and it hurt just to touch my legs. I had bruises everyehere. I gained 40 pounds in 2 months.

I went to seek help and the Dr. prescribed Gas-ex. I was mad, but took it...Finally I got so scared I stopped eating all but one meal a day. Wheat, rice and any other grain triggered the bloating.

I haven't had issues like that until the last 2 months. With money being tight, I've started eating bread, and beans and rice...I can't digest it. I know it's fermenting in my stomach, that is now very distended and it hurts to push my belly button back in. But it does with a gurgling whoosh. I eat once a day, but I feel like I can't swallow. I physically, feel the food get stuck in my throat. I have heartburn all the time. And then the gas, that I have to hide and pass. Burping and the other...*blush*

The other day I was in so much pain, I had diarrhea and was vomiting all day

So, I started taking some Pro-biotic pills and stopped eating any grain, but had some rice cakes the other night. Woke up in so my pain, I couldn't hardly tie my shoes.

I'm on my third day of eliminating all grain from my diet. I want to go into the Dr. But I don't want to waste my time on a fake diagnosis...

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I'd say..go into the Dr.s' office with a list of your symptoms and ask for a full Celiac panel. Many Dr.'s don't even think to test for Celiac. They most often just prescribe meds that counteract symptoms.

Link to comment
Share on other sites
GFinDC Veteran

Right, get the celiac panel done. If your doctor won't prescribe the test get a different doctor who will. The blood panel is easy, they just draw a little blood and send it to a lab for analysis. After the test you can go gluten-free and see if it helps. It may take 3 to 6 months or more to really feel better on the gluten-free diet though. It is not an instant cure. So stick with it even if it doesn't seem to be helping.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

Open Original Shared Link

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,459
    • Most Online (within 30 mins)
      7,748

    linda Jed
    Newest Member
    linda Jed
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...