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Test Results?

rami

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rami Apprentice
rami
Posted

My 8-year old son was recently diagnosed with Celiac disease after + bloodwork and biopsy. After recommendations from his doctor my husband and I, as well as our other two children were also tested. When the test was ordered for the children it included a ttg IGA, ttg IGG, and a total IGA. However, the test ordered for my husband and I by two different doctors only included the ttg IGA and ttg IGG, it did not include the total IGA. We were told by both of our doctors that our results were negative, but since the tests that were ordered were different from those ordered for the children I'm not sure if our results are accurate? My 8-year old is the only member of our family diagnosed and the only abnormality in his bloodwork was his ttg IGA, the ttg IGG and total IGA were normal. The other two children had "normal" results for all three tests. My husband and I had identical results as follows:

ttg IGA - 3

<=19 is normal

ttg IGG - 5

<=19 is normal

Although I am grateful, I find it strange that my poor son is the only member of our family with Celiac considering it is genetic. Can anyone offer any insight?

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mushroom Proficient
mushroom
Posted

My 8-year old son was recently diagnosed with Celiac disease after + bloodwork and biopsy. After recommendations from his doctor my husband and I, as well as our other two children were also tested. When the test was ordered for the children it included a ttg IGA, ttg IGG, and a total IGA. However, the test ordered for my husband and I by two different doctors only included the ttg IGA and ttg IGG, it did not include the total IGA. We were told by both of our doctors that our results were negative, but since the tests that were ordered were different from those ordered for the children I'm not sure if our results are accurate? My 8-year old is the only member of our family diagnosed and the only abnormality in his bloodwork was his ttg IGA, the ttg IGG and total IGA were normal. The other two children had "normal" results for all three tests. My husband and I had identical results as follows:

ttg IGA - 3

<=19 is normal

ttg IGG - 5

<=19 is normal

Although I am grateful, I find it strange that my poor son is the only member of our family with Celiac considering it is genetic. Can anyone offer any insight?

Carrying the gene only predisposes you to developing celiac; it does not mean that you will have it. It is widely accepted that there needs to be a trigger for celiac disease to develop, either physical or mental stress; childbirth can be a trigger. There is no way of knowing what your son's trigger was. But he must have received the gene(s) from either of you or both.

The reason for running the total serum IGA is to determine if you produce normal quantities of IGA antibodies. If you do not then they run the IGG versions of the tests. Both your doctors covered this possibility by running the tTG IGG test as well as the IGA.

frieze Community Regular
frieze
Posted

My 8-year old son was recently diagnosed with Celiac disease after + bloodwork and biopsy. After recommendations from his doctor my husband and I, as well as our other two children were also tested. When the test was ordered for the children it included a ttg IGA, ttg IGG, and a total IGA. However, the test ordered for my husband and I by two different doctors only included the ttg IGA and ttg IGG, it did not include the total IGA. We were told by both of our doctors that our results were negative, but since the tests that were ordered were different from those ordered for the children I'm not sure if our results are accurate? My 8-year old is the only member of our family diagnosed and the only abnormality in his bloodwork was his ttg IGA, the ttg IGG and total IGA were normal. The other two children had "normal" results for all three tests. My husband and I had identical results as follows:

ttg IGA - 3

<=19 is normal

ttg IGG - 5

<=19 is normal

Although I am grateful, I find it strange that my poor son is the only member of our family with Celiac considering it is genetic. Can anyone offer any insight?

I realize that you and your husband had both IgA and IgG run, but i would still like to see a total IgA. also the deaminated testing is apparently the "new" norm?

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      Celiac flare years after diagnosis

      By trents · Posted

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    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Celiac flare years after diagnosis

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      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
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