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Endoscopy - Saw Patchy Damage

Mom2-2girls

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Mom2-2girls Rookie
Mom2-2girls
Posted

Hello,

We are on our way to an official diagnosis of celiac for my 5 year old daughter.

She has had 2 positive blood tests (TTG & EMA)... both fairly strong.

Yesterday she had the endoscopy and the doctor came and said he saw patchy damage (not really bad damage), but that the doctor back at the GI clinic would review the biopsies and give the final diagnosis.

I guess I am pretty stressed that the endo will not be positive and she won't be officially diagnosed. If she gets the official diagnosis we have access to a nutritionist at Sick Kids...

Anyways... does anyone have any thoughts? If the doctor could see damage do you think there is a good chance the biopsies will be positive?

Any thoughts or comments would be most appreciated.

Thank you!

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mushroom Proficient
mushroom
Posted

Hello,

Anyways... does anyone have any thoughts? If the doctor could see damage do you think there is a good chance the biopsies will be positive?

Any thoughts or comments would be most appreciated.

Thank you!

The fact that the doctor could see damage without resort to the microscope is a pretty good indicator of a positive biopsy. The damage is most often seen only on biopsy. I think you will get your diagnosis.

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psawyer Proficient
psawyer
Posted

I agree. Visible damage means a very high likelihood for positive. The patchy part is a chance for error, but one would hope that samples were taken where the damage was visible.

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shadowicewolf Proficient
shadowicewolf
Posted

I also agree. That with the blood results (imo is enough to have a diagnosis) will get the positive.

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Mom2-2girls Rookie
Mom2-2girls
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Posted

Thanks so much for the replies! All this waiting is driving me nuts!! It has been over 4 months since her first positive blood test. At least now we can go gluten-free.

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