Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Newbie Posting Story And Wanting Advice

Taliesyn

Recommended Posts

Taliesyn Newbie
Taliesyn
Posted

Hi,

I am not sure if this is the right place?

I want to post my info and possibly get some feedback as I start on my journey.

About 10 yrs ago I started with symptoms that GP's were thinking were related to thyroid and then bloods were showing negative. I spent a long time with many symptoms including having a hysterectomy for fibroids (7 yrs) and weight gain, hair thinning,fatigue, cold intolerance/itchy skin/tinnitus type noises/low mood/mild anxiety/tearfulness/recurrent puffy face and eyes/bloating/some constipation - and so on.

I ended up joining a forum and finally having battled the system and seen a private doctor (who said I had an autoimmune thyroid condition) and now self treat - my health started to improve - since 2 yrs ago.

Recently I have started to crave food/always feel hungry and always being a chocoholic that has featured big time. I always eat healthy and have not really been into processed foods sticking with cooking fresh. I am always tempted to eat a lot of cakes/biscuits at work on special occasions or at home if it is there.

I have been comfort eating also due to some work stress.

My symptoms - I feel tired and not wanting to exercise/bloated/put on weight - 10lbs in about 4 months - fatty stools as described as a symptom of gluten intolerance which are really smelly (sorry). I have another cold and sometimes have achy bones/joints. I have had some sinus discomfort and headaches.

I am taking T3/Liothyronine and was taking B12 and Selenium ( I ran out and stopped taking the vitamins so regularly)

So - I am wondering whether I may be gluten intolerant and not having much faith in the NHS General Practitioners - I would like to explore this myself.

I do not have diabetes or any other conditions - I am female and 49 yrs old.

When Christmas is out of the way - I plan to address gluten and see.

Any thoughts would be very welcome.

Many thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

Try to ease yourself into eating more healthy fats, such as olive oil, coconut milk, avocado, nuts, because they sate hunger better than carbohydrates. Also, cravings for minerals and vitamins may show up in your body as sugar cravings, because "hunger" is not that specific, more of a generic sensation. Eating carbs in the form of high glycemic index ones ("white, fast acting") and sugar will spike your blood sugar, then it crashes, then it feeds another craving. So going back to the vitamin B mixture (gluten free) and adding in some calcium and magnesium and D may help with that, also.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

If you are in the UK you may want to go to your GP and ask for celiac blood tests and to be referred for a biopsy. You need to still be eating gluten for the tests to be accurate. Many areas still have access to gluten-free food on prescription if you have an offial diagnosis.

Many people here are self diagnosed, mainly through response to a gluten-free diet and how bad they get eating gluten, and their history.

Whichever route you decide come and ask lots of questions and get support. It can be overwhelming at first, but plenty of the folks here have great advice

GFinDC Veteran
GFinDC
Posted

Yep, get tested for celiac disease first, then try the gluten-free diet. The initial testing is just a blood draw to check for antibodies to gliaden, the protein in wheat that causes the auto-immune reaction in celiac disease. There are IgA and IgG antibodies tests, and ttg and Deamidated gliaden also, plus total IgA. Test results can take a couple weeks to get. If initial blood tests are positive, the docs usually want to do an endoscopy to check for villi damage in the small intestine, taking 5 to 8 biopsy samples. There are some newly identified forms of gluten intolerance that can't be detected with the current test methods though. So it is good to try the diet after the celiac disease testing regardless of results. That way if you have a non-testable condition, you may still discover it by dietary changes that results in symptoms improvement.

It is much harder to be tested after doing the gluten-free diet, and can be more painful also. After being off gluten a while the antibodies decrease, and to get antibodies back up to a testable level, the person needs to start eating gluten again for a while. Since symptoms are often more painful and unpleasant for people after stopping gluten and then getting re-exposed (glutened) it can be hard to endure a gluten challenge.

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...