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Connecticut Doctor, Waterbury To Danbury Area?

PaulE

By PaulE
in Doctors

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PaulE Rookie
PaulE
Posted

My daughter (age 22) is Gluten Sensitive, as discovered when her kidney disease (FSGS) went into remission as soon as she went gluten free. If she was accidentally glutened, she would spike on her urine test strips which we test every morning. She has tested negative for Celiac disease, and no I don't know which tests they did, and she is to scared of docs to ask! Her stomach has been bothering her since she went gluten-free (a year ago), and her gastro recently said she has IBS. She has not been eating much, so I would like to know if anyone can recommend a gastroenterologist between say Waterbury, CT and Danbury, CT, that has experience in Celiac disease. I can't imagine that she can't have celiac disease if we know Gluten causes her to leak protein, and causes scarring of her kideys?

  • 3 weeks later...
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Smylinacha Apprentice
Smylinacha
Posted

I see Dr. Burns in Trumbull. I also see Ann Zylic who is his PA. They are great....belong to the Primed Group.

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  • Posts

    • Newhere19
      New to all of this

      By Newhere19 · Posted

      Thank you both. I haven't had access to the test results but will get them and post here.
    • jjiillee
      Daughter waiting for appointment

      By jjiillee · Posted

      The ulcers are prepyloric ulcers. Not sure if that makes any difference. 
    • trents
      Daughter waiting for appointment

      By trents · Posted

      Duodenal ulcers are not uncommon either and often result from H.Pylori infections. https://www.healthdirect.gov.au/duodenal-ulcer
    • trents
      Rigorous exercise + inflammation/fatigue?

      By trents · Posted

      Just vitamin b1?
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      I had what was termed "lesions," and normally ulcers are in the stomach, rather than the small intestines. I'm not sure why they would want you to have her continue to eat gluten, since she had a positive blood test, but as her doctor said, if she is uncomfortable and having symptoms why not have her go gluten-free at this point? If her symptoms improve, it would be another indicator that she has celiac disease and/or gluten sensitivity. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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