
sandsurfgirl
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Everything posted by sandsurfgirl
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ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
sandsurfgirl replied to sandsurfgirl's topic in Coping with Celiac Disease
Ha ha we have had many go rounds on this topic! For me, I wasn't getting better and my last holdout was my beauty products. If you have short hair, maybe you can get away with it, but long hair just gets it in your mouth. The hair brushes on your face, you push your hair back with your hand and somehow that gluten gets you. Well it does me. My hairdresser... -
ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
sandsurfgirl replied to sandsurfgirl's topic in Coping with Celiac Disease
Kinnikckinnick and Katz make great donuts! But don't go there just yet. Let your gut heal. You can have your gluten free donuts in a few weeks or so. -
ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
sandsurfgirl replied to sandsurfgirl's topic in Coping with Celiac Disease
Irish Heart! Good to see you! Here's your cupcake and ice cream... you choose the flavor. LOL -
ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
sandsurfgirl replied to sandsurfgirl's topic in Coping with Celiac Disease
I remember those days Not me! I'm so glad to see some familiar faces around here. I'm sorry for being MIA. -
ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
sandsurfgirl replied to sandsurfgirl's topic in Coping with Celiac Disease
Super simple! Dump 2 cans of canned peaches with juice in the bottom of a greased dutch oven. Then dump your favorite gluten free vanilla or yellow cake mix over it to cover the peaches. I use Gluten Free Pantry. Then cut up one stick of butter into thin slices and arrange them over the cake mix. Bake at 350 covered for about 20 minutes and then start checking... -
ARCHIVED How To Convince Bf That Cross Contamination Is A Problem...
sandsurfgirl replied to SoLacey's topic in Coping with Celiac Disease
If I could get on my knees and beg you not to move in with him I would. You say it is an otherwise great relationship, but you may be a bit lovestruck and missing some things. At any rate, the things he is doing to you are abuse in my opinion. I don't mean to be harsh but here is how it reads to me. From what I read of what you posted he sounds very... -
ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
sandsurfgirl posted a topic in Coping with Celiac Disease
I used to post here all the time. I don't have time anymore, so I come on once in a great while. I just wanted to share where I am at 5 years into being gluten free as encouragement for the newbies. I was diagnosed at the age of 40. Extremely ill at diagnosis. It took me a full 6 months gluten free to have one symptom free day. I had horrible withdrawals... -
ARCHIVED Story Tavern In Burbank- Awesome! Owned By Celiac
sandsurfgirl posted a topic in Gluten-Free Restaurants
I went to the Story Tavern in Burbank, California today. Best gluten free food I have ever had eating out hands down. It is owned by a family and one of the family members has celiac disease. They do have some gluten on their menu but very little and they know how to handle CC issues. There was so much good food my kids and I ordered 3 things and shared... -
Reaction To Buckwheat?
sandsurfgirl replied to sandsurfgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes the blood type diet has lists of foods that are beneficial and foods to avoid for your blood type. My doctor recommended it and I figured it was worth a try. I've been totally gluten free for 4 years and eat a clean diet, live in a gluten-free household, yet still have lingering health problems. My vitamin absorption still isn't great. I can't get my... -
Reaction To Buckwheat?
sandsurfgirl replied to sandsurfgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm just going to avoid buckwheat. It doesn't taste all that great anyways and it's not worth it. I had brain fog really bad. It's one of the worst reactions I've had in years. I don't get glutened often. I even had the achy flu symptoms and everything. It was bad. -
ARCHIVED Is It Normal To Constantly Be Starving?
sandsurfgirl replied to Renegade's topic in Coping with Celiac Disease
When I first went gluten free I was starving all the time for a few months. I was very sick at diagnosis so it took me 6 months to feel normal and have a symptom free day. Hang in there! It gets better! -
Reaction To Buckwheat?
sandsurfgirl replied to sandsurfgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Did you move my post? I couldn't find it in coping with so I reposted because I had a glitch when I originally posted the topic. Then I found it here. -
Yesterday and today I've had horrible brain fog, like back in the old days when I was going through gluten withdrawal when I was first diagnosed. I have that achy flu like feeling when glutened and I am starving!! I started the eating for your blood type plan at the recommendation from my doctor, but it's really just changing a few of my normal foods...
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ARCHIVED Exhausted And Venting
sandsurfgirl replied to glutenfree015's topic in Coping with Celiac Disease
Why does your nutritionist have you on a high protein diet? When you are healing the last thing you need is unnecessary restrictions. You need carbs and grains for energy!!! My nutritionist is a college professor in nutrition and she is against high protein diets for a whole lot of reasons, and for someone who has been sick those reasons are all doubled.... -
ARCHIVED Dh On The Palm Of Your Hand?
sandsurfgirl replied to cap6's topic in Dermatitis Herpetiformis
I had very painful DH on the palms of my hands until I was diagnosed and went gluten free. I haven't had it since. -
In N Out is our go to fast food place. They are so careful about allergies, etc. Their fries are gluten free and who can beat those burgers? NEVER get their spread on your burger. It is full of crumbs from spreading it on buns and dipping the spatula. I always get no spread and ask for a packet on the side. They have individual packets by the register...
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We eat at El Burrito Jr. in Seal Beach quite often and I realized I had never posted about them. It's home cooked food and pretty inexpensive. The best thing is nearly everything on the menu is naturally gluten free. It's a family run place and when I was diagnosed one of the girls there went over the entire menu and ingredients with me. We have never been...
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ARCHIVED Legoland California
sandsurfgirl replied to melikamaui's topic in Traveling with Celiac Disease
It would be great if the OP can do a follow up post. Following up is very important to help others in our celiac community. We went there a year ago and we did not get CC'd. I spoke to the manager at the hamburger place and told them our "allergy" (I always say allergy so they take it seriously) is severe and that we will get very sick if our food isn... -
ARCHIVED Cc In Restaurant Salad Dressings
sandsurfgirl replied to sandsurfgirl's topic in Coping with Celiac Disease
Nobody was double dipping so its not as gross as it sounds, but still yes it's gross. It happened at every place I worked at though. -
ARCHIVED Reception Dinner Etiquette
sandsurfgirl replied to Songbirdy's topic in Coping with Celiac Disease
LOL! That smelly sandwich comment made me laugh. Who would bring a smelly sandwich anywhere? If you don't trust them, then just bring your own food. Find some sort of carrying case that can be disguised and eat discreetly. I've done it plenty of times at potlucks where I didn't feel like risking it. People are busy with their own thing. They aren't... -
When I was waitress, we would get hungry because the shifts are long with no breaks. The servers at every restaurant I worked at would grab a crouton, dip it in the vat of salad dressing and eat it as a snack. I had forgotten about this until recently. So last night I ate at Lucille's from their gluten free menu. I discreetly asked the waitress if they...
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ARCHIVED Reception Dinner Etiquette
sandsurfgirl replied to Songbirdy's topic in Coping with Celiac Disease
Banquet type facilities always do the best job of accomodating celiac! If I'm going to an event, I don't bother the host, bride, or whatever. I call the facility myself and tell them the event and what my needs are. Then when I arrive, I discreetly ask to speak to whoever is in charge and double check on my meal. I was a bridesmaid in my sister's wedding... -
ARCHIVED Gluten Withdrawal Symptoms?
sandsurfgirl replied to Kirstie's topic in Coping with Celiac Disease
Your signature says you were diagnosed in May. What is the purpose of your endoscopy? If your blood tests were positive then it's a positive. I refused endoscopy after positive blood tests. What is the point of invasive surgical procedures just to confirm what we already know. My son's pediatrician doesn't use endoscopy unless she absolutely feels a need... -
ARCHIVED Doctors Still Not Diagnosing Me, Need Advice!
sandsurfgirl replied to Kirstie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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ARCHIVED Doctors Still Not Diagnosing Me, Need Advice!
sandsurfgirl replied to Kirstie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is the quandary that celiacs face all the time with ignorant doctors. IBS is a junk diagnosis. It's what all of us were diagnosed with. My GI doc told me there was no way I had celiac and it was IBS. He talked me out of testing and I suffered for 8 long years. Then an ER doc told me it was celiac and to get tested. My blood tests were through the roof...