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SMRI

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Everything posted by SMRI

  1. SMRI
    Hard part with getting food from other parents is you don't know how it was prepared or what else it touched. At the in-law Christmas party this year, we brought veges and dip that I made because I knew that would be filling and fine for me to eat....until my B%*#* sister-in-law took her hamburger buns out of the package right over my vege tray....which...
  2. SMRI
    My MIL told me at the family Christmas celebration that she though someone was just making up all of this Celiac stuff to make money..um, ok....We've been to visit them twice since my diagnosis and they keep insisting on taking us out to eat because it's "easier". I brought plenty of food to eat so I was fine. The place we went was in no way gluten-free...
  3. SMRI
    Making steak and baked potatoes tonight....once I get the motivation to get the steaks going anyway....I would rather grill them but it's too cold!!
  4. SMRI
    I would take him to an immunologist or an infectious disease doctor. Have them run the full IG panel--IgA, IgG, IgM, etc. If his total IgA and IgG are not normal, then his celiac blood tests won't come back accurate. Ask for the IgG subclasses as well. IgG3 subclass deficiency has very similar symptoms to Celiac. Also, the allergy testing isn't definitive...
  5. SMRI
    I'd get a second toaster. It will cost less in the long run vs the foil or parchment. Any gluten food at our house is in the basement. The kitchen is strictly gluten-free. Your utensils and such should be fine as long as there are not deep scratches or you can't wash them for whatever reason. Wooden spoons are pretty much a no. Your dishes should...
  6. SMRI
    Links have been posted disputing this claim and those 3% have been found to have something, not Celiac....if Celiac is an autoimmune disease, which it is, there has to be some genetic component present, identified or not.
  7. SMRI
    I think the "silly and embarrassing" is something that you are projecting. If people ask, just tell them because of your recent surgery, you can't have alcohol and then move on. If your "friends" make you feel like you are sticking out because you are not drinking, then they really are not your friends, besides, who would even know if you are having a ...
  8. SMRI
    That is NOT true.....medications are tightly controlled by the FDA. There is a very long, very detailed ingredient list along with the chemical compounds for all prescription drugs. Also, generics are lower cost because they are no longer under patent and the R & D costs associated with the name brand drugs are no longer included in the cost. Open Original...
  9. SMRI
    If you do want to do the wedding at the cabin--sounds lovely by the way---there may be a caterer that is well versed in gluten-free cooking. Buying all the food and the time to prep and clean it up just might be worth the cost of the caterer, especially since the rest of your costs will be minimal. The last wedding I was at (guest) the caterer was very...
  10. SMRI
    I've been doing so much baking/cooking the past few weeks I'm not doing anything today. Someone else can cook tonight
  11. SMRI
    So? Just because celiac is suspected doesn't mean that the other symptoms are not from something else. I don't see anywhere in the OP's post that the child is having anaphlaxtic reactions either. Most "seasonal/environmental" allergies most certainly do show up on allergy tests....
  12. SMRI
    It's possible that other genes are associated with Celiac I guess, but there has to be some genetic component or it's not Celiac.
  13. SMRI
    You've said this before but simple biology says that what you are saying is not possible.
  14. SMRI
    Actually the dark circles and cough are very, very much allergy symptoms. It's also very possible that he isn't allergic enough yet for it to register on the allergy testing. Our oldest had those exact symptoms and nothing showed up on the allergy testing until he was much older. His allergy dr was very good and understood that and he was treated. The...
  15. SMRI
    I just ate at a restaurant that had gluten free ravioli!! I really debated about that or the pasta dish I got. I ended up with the other pasta dish though.
  16. SMRI
    I would also talk to the manager of your grocery store to see if they can stock other gluten free foods for you, bread and pasta especially. Udi's bread and some others come frozen so it's easier to keep in a store with lower turnover of products. I'm going to guess you are not the only one in your town that would buy the gluten-free products too.
  17. SMRI
    Do you mainly use this for seasonings? Why bother drying them out? Just take the same ingredients and use them "fresh." We usually have a cut up onion in the fridge in an air-tight bowl that we use for cooking. The rest of your ingredients are just normal spices that don't need to be dehydrated.
  18. SMRI
    To add to what other's have said, if it happens and you can't call in sick, you suck it up and do your job. It just is what it is. I also get the brain fog and fatigue along with the gastro issues. You just have to do what you have to do.
  19. SMRI
    I made some gluten-free cinnamon rolls last night--they are baking in the oven right now. They better be good because they were a pain in the rear to make . Prime rib is on the menu for Christmas Dinner today. That has been dry aging in the fridge for a couple days now.
  20. SMRI
    Have they ruled out other causes as well? I know most go right to Celiac when there are GI issues involved but there are other conditions that could cause this. Does he have any other symptoms--joint pain?? Have they tested him (and your daughter) for Cushings?
  21. SMRI

    ARCHIVED Advice Please

    SMRI replied to Blue14's topic in Coping with Celiac Disease

    Where is the pain? If you have ulcers, he should have prescribed some antibiotics. If it's joint pain, then prescription strength Advil or similar. Your best recourse is going gluten free ASAP.
  22. SMRI
    Try switching to Decaf...I know, I know...but sometimes it's the caffeine that is the problem and not so much the coffee. Coffee does have an enema effect so that could be part of your problem. Are you drinking plain coffee or is it flavored or are you adding anything to the coffee?
  23. SMRI
    Depending on how you ate before, most food is naturally gluten free. Don't go overboard thinking you have to buy dedicated gluten-free foods. Obviously for bread, pasta, etc. you will have to change, but if you usually have a meat, potatoes, vegetable for a meal, all of that will most likely be gluten-free. Some things to watch are meats with added seasonings...
  24. SMRI
    If it were the flu you would feel like you got hit by a truck. You would also have a high fever, 103 or so. One of my friends posted that her eyes even hurt. Trust me, if you had the flu, you would know!! Highly unlikely you got glutened from a plastic fork that had been washed. Hard to speculate without seeing your food logs. Anything newish that...
  25. SMRI
    He has Celiac. Those tests are very specific and to hit a positive on both, no question. Not all people, especially younger children, have symptoms.
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