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knitty kitty

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Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    @selectivefocus, You said "Celiac also increases issues with the pancreas and enzyme production. My enzymes were super low when my allergist tested, and my celiac 9 year old had the same issue." Thiamine is needed to make many of those enzymes. Every cell in your body and brain needs thiamine. Thiamine is used in large amounts in the pancreas...
  2. knitty kitty
    I experienced dysphagia (difficulty swallowing) as a symptom of Thiamine deficiency. Doctors don't recognize thiamine deficiency outside of alcoholism. Severe dysphagia as the presenting symptom of Wernicke-Korsakoff syndrome in a non-alcoholic man https://pubmed.ncbi.nlm.nih.gov/18379741/ And... A difficult diagnosis to swallow https...
  3. knitty kitty
    Ask your doctor to consider "Gastrointestinal Beriberi" as the correct diagnosis. Examples of cases.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6040496/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6978589/ I lost sixty pounds in a month because of gastrointestinal beriberi...
  4. knitty kitty
    It's magnesium deficiency! "7 Signs and Symptoms of Magnesium Deficiency" https://www.healthline.com/nutrition/magnesium-deficiency-symptoms Muscle twitches and cramps as well as heart palpitations and anxiety are all symptoms of magnesium deficiency. I have experienced this myself. I've been in the emergency room throwing PCVs, anxiety...
  5. knitty kitty
    No, iodine by itself can trigger DH to flare. Gluten does not have to be present. It's the gluten antibodies your body has made, already in your system, that aggregate into the DH lesions. These gluten antibodies continue to be produced and linger in your system for eighteen months to two years after an exposure to gluten. DH is also pressure sensitive...
  6. knitty kitty
    DH will flare up if you eat iodine. Iodine is high in your Greek yogurt and other dairy products, eggs, shellfish, fish, seaweed, sea salt, and iodized salt. I experienced DH, too. Avoiding iodine in the diet and medicines (like IV contrast dyes) will help immensely. I also take niacin (vitamin B3) and the amino acid tryptophan which helps...
  7. knitty kitty
    @J Morgan, Thiamine needs magnesium to work properly. I remember you said your magnesium was checked as being fine, but adding a magnesium supplement wouldn't hurt. Magnesium citrate and magnesium glycinate are the most easily absorbed (and least likely to have a laxative effect). Keep us posted on your progress.
  8. knitty kitty
    Links to Dr. Lonsdale's published on PubMed scientific articles are linked in his articles. Nonetheless, apologies.
  9. knitty kitty
    This article explains how vaccination can be a precipitating cause of health problems because..... well, read the article... Open Original Shared Link
  10. knitty kitty
    Covid patients have been found to suffer from Thiamine deficiency. There are many studies showing high dose Thiamine will help with the after effects of Covid. Please read.... Open Original Shared Link
  11. knitty kitty
    https://www.google.com/search?q=ecological+formulas+allithiamine+vitamin+b1&source=hp&oq=Ecological+Formulas+all&gs_l=mobile-heirloom-hp.1.1.0l2j0i22i30l2.2237.8195.0.10212.13.12.0.1.1.0.245.1765.0j11j1.12.0....0...1.1j4.34.mobile-heirloom-hp..3.10.1347.wMpOF3aXHRQ And... https://www.google.com/search?q=benfotiamine+vitamin+b1.+life...
  12. knitty kitty
    Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/ Please read this. It describes gastrointestinal beriberi due to thiamine deficiency in this case caused by poor diet and alcohol, but Covid causes thiamine deficiency, too. Different causes...
  13. knitty kitty
    Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/ Please read this. It describes gastrointestinal beriberi due to thiamine deficiency in this case caused by poor diet and alcohol, but Covid causes thiamine deficiency, too. Different causes...
  14. knitty kitty
    Ok, I got the EquaCare Jr label which does have corn syrup solids. But you're right, the Essential Care, Jr has tapioca starch and tapioca solids. Again, some Celiacs have problems with tapioca products. Vitamins B12 and Vitamin D can be stored in the liver for years. The other B vitamins can become deficient in a matter of weeks. Most blood...
  15. knitty kitty
    Be aware that gluten free facsimile foods are not required to be enriched with vitamins and minerals like their gluten containing counterparts. Vitamins and minerals are destroyed in the processing of wheat, so the government mandates adding vitamins and minerals to wheat products. Gluten free processed products are not required to add vitamins and...
  16. knitty kitty
    Essential care junior's first ingredient is corn syrup solids. Corn and corn derivatives can be irritating to some Celiacs. In an earlier post, you mentioned having more neurological problems. You need to be checked for vitamin deficiencies. Vitamin deficiencies can cause many of the symptoms you relate. You have had nausea and diarrhea for many...
  17. knitty kitty
    @BrianG, What are you eating? Are you filling up on gluten free facsimile foods? Are you following any specific diet (fodmaps, AIP)? Are you gaining weight from putting on muscle or are you putting on fatty pounds in the abdominal region? Can you give us a typical day's intake?
  18. knitty kitty
    @J Morgan, Give another thought to that "nutritional" shake. It's made with agave. Agave has LOTS of fructose. Lots of fructose can cause symptoms you've described. Read this.. . https://theceliacmd.com/what-is-fructose-malabsorption-is-it-the-same-as-fructose-intolerance/ And.... https://www.healthline.com/nutrition/agave-nectar-is...
  19. knitty kitty
    Hey, Aaron, Every one is different and has different tolerance levels. You can try keeping coffee on the menu. Keep in mind a few things. Coffee is a histamine releaser. Caffeine is a stimulant, it stimulates your brain, but also stimulates your intestines to move food through faster. Coffee is a diuretic. I switched to oolong tea.
  20. knitty kitty
    Sarah, welcome to the forum! I agree with @trents and @GFinDC, the time to do Celiac panel blood tests is now before his antibodies decline. The symptoms you listed, particularly 4 and 6 through 15 inclusive, are symptoms of vitamin deficiencies, specifically Vitamin B1 Thiamine. Celiac Disease causes malabsorption which results in malnutrition...
  21. knitty kitty
    @ChessFox, To answer your question "Did anyone notice perhaps milder mental distress compared to before after months or years of living gluten-free?" Many Celiacs report having more intense symptoms after a glutening than they had previously. This happens when a doctor orders a patient who has already gone gluten free to do a gluten challenge...
  22. knitty kitty
    "The Role of Thiamine in Cancer: Possible Genetic and Cellular Signaling Mechanisms" Open Original Shared Link "A significant association has been demonstrated between cancer and low levels of thiamine in the serum." "A very high dose of thiamine produces a growth-inhibitory effect in cancer."
  23. knitty kitty
    The medications used in numbing shots at the dentist can cause a depletion in thiamine. The nerves in the head and neck use lots of thiamine. Have you tried taking more thiamine? Also Vitamin C can help with gum sensitivity.
  24. knitty kitty
    Thiamine can help lower creatinine and albumin levels. Thiamine is Vitamin B1. Malabsorption of the water soluble B vitamins is common in the newly diagnosed. The water soluble B vitamins and Vitamin C need to be replenished every day. Bloated belly is a symptom of Thiamine and Niacin (Vitamin B3) deficiencies. Picky eating can be a symptom of...
  25. knitty kitty
    The Specific Carbohydrate Diet may help.
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