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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    You can have Celiac Disease and DH without gastrointestinal symptoms. Sometimes DH is the only symptom. It can be difficult to properly biopsy and diagnose DH because the sample must come from near a DH blister, not on top of it. So having one positive is all you need. Having normal anti ttg and IgA is great! Shows you're probably not getting glutened...
  2. knitty kitty
    Jesse, Welcome to the forum! Hope we can direct you to answers here. What do you include in your diet? Do you include dairy or nightshades (tomatoes, potatoes, peppers, eggplants)? Are you experiencing diarrhea or constipation? Have you tried the Autoimmune Paleo Diet? I found it very healing. Have you been checked for vitamin and mineral...
  3. knitty kitty
    Rafea, I know how itchy and miserable DH can make you feel. I have DH myself. I know that taking Niacin helped me when I had very bad DH outbreaks. Niacin and Nicotinic Acid (not related to nicotine in tobacco, just a different form of Niacin that does not cause flushing) REALLY do work to alleviate the itchiness and heal your skin! ...
  4. knitty kitty
    I believe you. You're not alone. I have horrible reactions like that, too. You're in good company here! Glad you found us! Welcome to the forum!
  5. knitty kitty
    Oooh, sorry about the typo. That should be Niacin, B3. It's always good to go by the names. Once the niacin deficiency was corrected, the rash has gone away, but it was awful, yes. Usually, if you're low in one B vitamin, you'll be low in other ones, too. Best to take a B Complex to cover all the B's. And make sure you consume...
  6. knitty kitty
    Rafea, Niacin deficiency causes an itchy skin rash. Other vitamin deficiencies (Vitamin B12, thiamine, B6) can affect the nerves that can cause tingling that feels like itching. What does your rash look like? Dry flaky? Wet, weepy?
  7. knitty kitty
    "Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease" https://pubmed.ncbi.nlm.nih.gov/12479649/
  8. knitty kitty
    Conditions That Cause Villous Atrophy https://www.verywellhealth.com/villous-atrophy-562583
  9. knitty kitty
    Charks, I agree with Scott. Switch to a B-Complex supplement. B12 is just one of eight essential B vitamins. They are interdependent on each other to function properly. A B-Complex supplement will have all the B vitamins together in proper balance. Here's an article that explains it... https://www.healthline.com/nutrition/vitamin...
  10. knitty kitty
    Would a genetic test for the most common Celiac Disease genes be a possibility? If you've got the genes and the villi damage from the biopsy, would that be enough for your doctor to make a definite Celiac diagnosis?
  11. knitty kitty
    I've found a tallow balm from Vintage Tradition that is exceptional at helping my skin whether it's eczema, psoriasis or a DH flare. It really helped when I was deficient in niacin (vitamin B2) and developed an itchy scaly dermatitis. It got worse when exposed to sunlight. It looked like flat blisters that dried and flattened into scales and itched awfully...
  12. knitty kitty
    Penguin11, I found a couple of articles for you about mouth sores having a connection to vitamin deficiencies which can occur with Celiac Disease. And... "Recurrent aphthous ulceration: vitamin B1, B2 and B6 status and response to replacement therapy" https://pubmed.ncbi.nlm.nih.gov/1941656/ And, yes, I have had symptoms...
  13. knitty kitty
    Did you know thiamine helps zinc get absorbed? "Role of vitamin-zinc interactions on in vitro zinc uptake by human erythrocytes" https://pubmed.ncbi.nlm.nih.gov/15235145/
  14. knitty kitty
    Unintentional weight loss is a classic symptom of Thiamine deficiency. Muscle wasting is a classic symptom of Thiamine deficiency. Your body needs thiamine to turn carbohydrates into energy. Without enough thiamine, your body burns fat and muscle as energy sources because this route doesn't require thiamine. Please read this article....and the...
  15. knitty kitty
    Yes, gluten or wheat based fillers are often used in medications. Your doctor and your pharmacist need to review your prescriptions and change them to gluten free versions of the same medications.
  16. knitty kitty
    You can have thiamine deficiency with or without Celiac Disease. Antibiotics for bad skin and antibiotics for SIBO can contribute to Thiamine deficiency. Antibiotics cause thiamine depletion. Sulfa drugs, including sulfa based antibiotics or the sulfa preservatives used in them, contribute to Thiamine deficiency. Your body needs thiamine to process...
  17. knitty kitty
    You can have thiamine deficiency with or without Celiac Disease. Antibiotics for bad skin and antibiotics for SIBO can contribute to Thiamine deficiency. Antibiotics cause thiamine depletion. Sulfa drugs, including sulfa based antibiotics or the sulfa preservatives used in them, contribute to Thiamine deficiency. Your body needs thiamine to process...
  18. knitty kitty
    Sweet potatoes also contain thiaminase, an enzyme that destroys thiamine ( vitamin B1). Sweet potatoes are high carbohydrate. You need 0.5mg per 1000 calories. You need more to combat the thiaminase and the large amount of carbohydrates. Ppi's will cause malabsorption of thiamine. Antibiotics, like those given for SIBO, can precipitate thiamine...
  19. knitty kitty
    Gerd is a symptom of chronic subclinical thiamine deficiency. "When SIBO & IBS-Constipation are just unrecognized thiamine deficiency" https://www.objectivenutrients.com/insights/when-sibo-ibs-constipation-are-unrecognized And.... "Thiamine Deficiency - A Potential Cause of SIBO and other Gut Dysfunction?" https...
  20. knitty kitty
    I found some more Thiamine research and I'm adding it here. High carbohydrate diets are bad..... "Thiamine deficiency in a dog associated with exclusive consumption of boiled sweet potato (Ipomoea batatas): Serial changes in clinical findings, magnetic resonance imaging findings and blood lactate and thiamine concentrations" https://onlinelibrary...
  21. knitty kitty
    I wrote this post about vitamin deficiency testing which is not always an accurate measurement of vitamin status. It's been my experience that doctors may routinely test B12 and Vitamin D, but not thiamine or the other B vitamins. Could you share your vitamin test results? http://www.hormonesmatter.com/vitamin-therapy-paradox/
  22. knitty kitty
    Ffinley, You poor thing! My heart goes out to you. I suffered from terrible neuropathy. My doctors blew me off as hypochondriac, and I lost my livelihood, too. I found answers.... Thiamine deficiency caused by prescription medications... "Drug–nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter T...
  23. knitty kitty
    Thought this article might help.... Neurophysiology of the “Celiac Brain”: Disentangling Gut-Brain Connections https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5591866/
  24. knitty kitty
    I agree with Trents that malabsorption due to villi damaged by Celiac Disease is one reason deficiencies of folate, B12, and iron persist after a gluten free diet. Another possible reason could be that Celiacs don't choose foods high in folate, B12, and iron, foods like liver and green leafy vegetables. Wheat flour is legally required to be enriched...
  25. knitty kitty
    I think this thread might be helpful..... Hope this helps...
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