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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. I like the book The Paleo Approach by Dr. Sarah Ballantyne (a Celiac herself). She includes information on the Autoimmune Paleo Diet and nutritional aspects of Celiac Disease. Thiamine is sold over the counter, no prescription needed, as a vitamin supplement. I get mine on Amazon. Allithiamine and Benfotiamine are the kinds of thiamine I take. Thiamine...
  2. @charliethecowboy, Welcome to the forum! You're in good company. I've been through it, too. Turns out I had High Calorie Malnutrition. I was eating too many carbohydrates, but not getting enough vitamins (Thiamine specifically) to process them. Gluten containing products are required to be enriched with vitamins and minerals to replace...
  3. Thiamine insufficiency affects the Vagus nerve. The Vagus nerve controls your throat and digestive tract. Thiamine is needed for muscle contractions and nerve transmission. Insufficient thiamine can affect the sphincter muscles not contracting properly resulting in acid reflux and hiatal hernia. PPI's can affect thiamine absorption in the...
  4. Niacin, the kind that flushes, is good for helping DH flares go down. (250 mg twice a day). Avoiding foods high in iodine (shellfish, seaweed, iodized salt and Dairy) reduces flares.
  5. Accept the two positive test results. The small intestine is as large as a tennis court if laid out flat. Much of the damage can be microscopic and patchy. You've got extra-intestinal symptoms (symptoms outside of the GI tract), your nerve and muscle pain, which can be indicative of an autoimmune response. Insufficiencies in some B vitamins (Thiamine...
  6. @thorn, The white rice and rice cakes, gluten free corn chips and crisp bread are not allowed on the Autoimmune Paleo Diet. These are empty carbohydrates. Gluten free facsimile foods are not required to be enriched with vitamins and minerals. Gluten containing products are required by law to be enriched with vitamins and minerals to replace those...
  7. Welcome back, @thorn, Can you tell us what medications you're on? Also tell us what you include in your diet.
  8. Thought these might be relevant.... "Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet" https://pubmed.ncbi.nlm.nih.gov/28220520/ And. ... And.... "Combined use of SSRIs and NSAIDs increases the risk of gastrointestinal adverse effects" https://www.ncbi.nlm.nih.gov/pmc...
  9. You should be off supplements for six weeks before blood tests, otherwise you're just measuring the supplements you've taken. Probiotics can encourage bacteria to grow in the small intestine resulting in SIBO which can explain your ongoing symptoms. Have you tried the Autoimmune Paleo diet?
  10. Forgot to post this... "Nutritional Neuropathies" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/ Please read.
  11. @AmericanaMama Please get checked for vitamin deficiencies! Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies which can cause peripheral neuropathy. I became very deficient in vitamins before a Celiac diagnosis. I had the peripheral neuropathy up into my thighs, arms, and face. I...
  12. @CeliaCupCake, Have you been checked for vitamin and mineral deficiencies? Having diarrhea for an extended period of time means you are not absorbing nutrients and vitamins well. The eight B vitamins are water soluble and lost quickly in diarrhea, constipation and vomiting. Deficiencies in thiamine, niacin, or B12 can cause continuing digestive...
  13. And another.... "The Role of Vitamins and Minerals in Psychiatry" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/#!po=2.30769
  14. Thought this article would be of interest.... "Could High-Dose Thiamine Reduce Mortality from COVID-19?" https://www.hormonesmatter.com/thiamine-for-covid19/
  15. "Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/ "A number of studies have shown an inverse association between thiamine levels and symptoms of depression in adults."
  16. @pokey449 High dose thiamine supplementation is needed to reverse thiamine deficiency. High dose Thiamine is 500 mg or more (some take 1000 mg or more) a day for weeks to months. I started with 100 mg three times a day and added 50 to 100 mg until I was up to 1000 mg a day. I took 50 - 100 mg every three hours. Smaller doses throughout...
  17. @pokey449, I take Benfotiamine and Allithiamine....... over the counter vitamins. https://www.lifeextension.com/vitamins-supplements/item00925/mega-benfotiamine?gclid=EAIaIQobChMI4p2A8eWB8AIVaTizAB2I0wEWEAQYASABEgJhMfD_BwE And.... https://www.lifeextension.com/search#q=Allithiamine&t=coveo4A2453FD Imho, doctors...
  18. @pokey449, Here's an article that explains how the vagus nerve controls your digestive tract. Without enough thiamine, things don't work right. Thiamine is needed to make and secrete CCK, digestive enzymes, and insulin, among other things. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/ And...
  19. @pokey449, There's a connection between gallbladder problems, SIBO, continuing gastrointestinal problems band thiamine insufficiency. It's called Gastrointestinal Beriberi. Ask your doctor. Since blood tests aren't accurate, the best test for thiamine deficiency is a rapid response to thiamine supplementation (500mg/day) for several weeks. ...
  20. "Be well: A potential role for vitamin B in COVID-19" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ Oy! TAKE YOUR VITAMINS!
  21. @Emiandgabesmom, Celiac is genetic. Emi and Gabe need to be tested as well. Blood tests are not accurate for vitamin deficiencies. While blood levels may show normal levels, tissues and organs are deficient, giving their vitamin stores to the blood to supply the brain. Nsaids can cause continuing damage to your digestive system. Thiamine...
  22. Perhaps this will be of interest to you.... "Understanding nutrition, depression and mental illnesses" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/#!po=63.7500
  23. Niacin (Vitamin B3) helps with DH, but you have to take the kind that flushes (250mg/day). Avoiding foods high in iodine (shellfish, seaweed, iodized salt) reduces flavours.
  24. I praise G* d for Celiac because it's a disease that doesn't require pharmaceuticals or surgery to correct. We simply need a good diet. Here's my (other) favorite site... information from Dr. Marrs and Dr. Lonsdale made a huge impact on my life. https://www.hormonesmatter.com/contemplating-cyclic-vomiting-syndrome/ Keep us posted!
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