knitty kitty
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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Celiac Disease Treatment and Continuing Symptoms
knitty kitty commented on Mary Anderies's article in Spring 2021 Issue
I suggest you look into thiamine supplementation. Kidney disease is connected to not having enough thiamine (Vitamin B1). Talk to your doctor about supplementing. Google "thiamine and kidney disease" Open Original Shared Link- 50 comments
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@lindseyg930, Welcome to the forum! Yes, even though your daughter is very young, I think an endoscopy is warranted in this case. Definitely to check for Celiac Disease, but also for other problems. One poster's daughter had a twist in her intestines that would not have been found without an endoscopy which once untwisted she improved dramatically...
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Thiamine and Niacin help peripheral neuropathy!!! All the B vitamins work together. Add high dose (+500 mg) thiamine and 250 mg of niacin (and some riboflavin and biotin). Those methylated forms of Cobalamine and folate and P5P are available separately online and much cheaper. Thiamine and niacin are needed to provide energy and enzymes...
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@Collette38, I had trouble absorbing Vitamin A from oil filled capsules. Fish allergy prevents me from taking cod liver oil which is a good source of both Vitamin A and D. Celiacs have trouble absorbing fats. I found capsules of the dry form of Vitamin A online and was able to absorb it better that way. I like keeping my Vitamin D in the 70...
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Welcome to the forum,@Sambozzi, Have you discussed taking a genetic test with your doctor? Testing positive for some of the most common genes related to Celiac and improved health on a gluten free diet is frequently accepted as a diagnosis for Celiac.
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Thought this might be of interest..... "Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/
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@trents is correct. The B vitamins are water soluble and must be replenished every day because they can't be stored long. Insufficiency of thiamine can occur in as little as nine days. Vitamin A is a fat soluble vitamin that can be stored in your liver. It can take years to deplete your vitamin A stores. Too much vitamin A can be bad...
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Bernard Matthews Turkey Twizzlers
knitty kitty replied to C How's topic in Introduce Yourself / Share Stuff
Noticed another boo boo. A blood test for anti-Tissue transglutaminase antibodies is used to diagnose Celiac Disease. Sorry. -
Bernard Matthews Turkey Twizzlers
knitty kitty replied to C How's topic in Introduce Yourself / Share Stuff
Thanks, @trents, Tissue transglutaminase is produced during inflammation, but also becomes part of the inflammation process. The function of tissue transglutaminase in celiac disease https://pubmed.ncbi.nlm.nih.gov/22326684/ "Tissue transglutaminase (tTG) is a calcium dependent ubiquitous enzyme which catalyses posttranslational... -
Bernard Matthews Turkey Twizzlers
knitty kitty replied to C How's topic in Introduce Yourself / Share Stuff
Food manufacturers frequently use "meat glue" to stick together processed meats so that they will hold their shape. It is used in chicken nuggets, sausage, luncheon meats. "Meat glue" is often used in yogurt, ice cream, baked goods and the like to improve texture. It is used in gluten free facsimile foods, like cookies, to improve texture. "Meat glue... -
I agree with @CMCM that getting a genetic test should be a big part of the diagnostic process for Celiac Disease. Granted, not everyone who has the genes for Celiac Disease actually gets Celiac, but for those that are having symptoms and seeking medical assistance, those should be tested. A positive result for one of the most common Celiac genes with...
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Here's the case studies and articles... "Gastrointestinal beriberi: a forme fruste of Wernicke’s encephalopathy?" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6040496/ And... "Elevated Lactate Secondary to Gastrointestinal Beriberi" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ And a variety of thiamine a...
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Welcome to the forum! I'm agreeing with @trents, you only need one gene for Celiac Disease. As I understand it, (knowledgeable others correct me if I am not correct), HLA DQ 2.2 heterozygous reacts to a smaller subset of gluten proteins than HLA DQ 2.5, but it still reacts to gluten. In your googling, did you find this article to explain...
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@Emiandgabesmom, Welcome to the forum! Would your doctor do a DNA test to see if you have any of the most common genes for Celiac? A positive test for a Celiac gene and improvement on a gluten free diet is sometimes accepted as a basis for diagnosis. Few doctors have experienced Celiac Disease firsthand and don't understand the extent...
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Benfotiamine, Allithiamine and thiamine HCl are available through stores on line, like at Amazon. I take several smaller doses throughout the day and with meals for a cumulative high dose total over the course of the day. Blood tests for the B vitamins are not always accurate. Blood tests for thiamine often reflect how much thiamine you've consumed...
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I have a problem with nightshade vegetables: potatoes, tomatoes, eggplant and peppers. Seems there's chemicals in nightshades that contribute to leaky gut syndrome in a cumulative way. Here's more.... Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov...
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Thought this case study might be of interest.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7306676/
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@DemonKnight said.... "If any substantial saturated fats or high sugar content gets in there, it causes a reaction of some sort and shuts down my bowel habits completely the next day." If you have problems digesting sugars and fats, consider supplementing with thiamine. Thiamine deficiency can cause weight loss, Gastroparesis, and constipation...
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@dolson, I'm sorry to hear you're still having such problems. Benfotiamine, a form of thiamine, has been shown to help with diabetes. Open Original Shared Link And high dose thiamine (500 mg) helps with Gastroparesis.
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Omeprazole causes B12 deficiency. -
Thiamine comes in different forms. Thiamine HCl is what I started taking at first. I started taking 100 mgs with each meal. Three hundred mgs a day was working, but I had read studies saying some people get better results at 500 mg. So, Celiac Guinea Pig that I am, I added more. I guess I was one of those people. Vast improvements! Later...
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Yes, thiamine is safe, even in high doses. There's no toxicity. I take a B Complex plus extra thiamine, Allithiamine. As someone who works out, you have a higher metabolic need for thiamine. Thiamine is necessary to provide energy for those muscles to work. Metabolic need for thiamine increases when you're an athlete, work out of doors and...
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I use Naturewise Organic Flaxseed oil.
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Fish oil caps are a problem for me, too. I switched to flax seed oil caps for the omega threes and separate vitamin D and vitamin A supplements. Skip fish for now and try it again in three to six months. This is the fun Celiac Guinea Pig part where you test foods, record the reaction in your food/mood/poo'd journal and try them again in a few months...
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I'm pleased to hear that you are making progress! You get to become a Celiac Guinea Pig now and experiment with chicken and fish and what YOUR system will tolerate. The book is available on Amazon.co.UK and on some used book seller sites (abebooks) and ebay. I hope you can find a copy. Keep us posted on your progress!
