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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Within minutes of taking thiamine supplements, I noticed improvement. It was astounding how quickly and how dramatically the changes came. I had a chronic thiamine deficiency over a period of years. I got lower and lower in thiamine and acquired more and more symptoms. I would get headaches with pressure during physical activity, taking longer...
  2. knitty kitty
    Noglu10pls, Welcome to the forum! You said your symptoms are getting worse.....do the eye swelling and sinus clogging happen right away after consuming gluten? If the facial edema occurs immediately after gluten ingestion, I would suspect you may have an allergy to wheat. An allergic reaction to wheat could case anaphylaxis (throat and sinuses...
  3. knitty kitty
    Glad to know it's the iron supplements! Make sure to take iron with Vitamin C supplement or foods for better absorption of iron. Happy to help😺
  4. knitty kitty
    SLPMom85, Welcome to the forum! We often recommend keeping a food/mood/poo'd journal. You may find changes in diet might have results like you describe. New healing intestines might not digest everything consistently. Have you added extra green veggies? Iron supplements can make bowel movements rather green or dark. Grape soda can do the...
  5. knitty kitty
    I thought this NIH study might help you.... Evaluation of the Correlation Between tTG-IgA Titer and Duodenal Biopsy Findings in Children With Suspected Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4733291/#!po=77.2727 "Patients with failure to gain weight (mean 93 IU/mL) had lower serological titers, compared to other...
  6. knitty kitty
    Have you tried the Autoimmune Paleo Diet? "Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/#!po=42.1569 This diet really helped me. Found this explanation of "cross reactivity" for you..... https://www.thepaleomom.com/gluten-cross-reactivity-update-how...
  7. knitty kitty
    Mer, I would first discontinue the prebiotic and probiotic. You're just feeding the fungus. I would go on the Autoimmune Paleo Diet... it promotes intestinal healing while starving off those bad bacteria and fungi. Lots of help on Dr. Ballantyne's site and her book (she's celiac, too)... https://www.thepaleomom.com/books/the-paleo-approach...
  8. knitty kitty
    Yes, I take Benfotiamine with thiamine by Life Extension. It's good to start taking the Benfotiamine slowly, gradually increasing every few days. If you feel a little off, that's fine. There's a "paradox effect" as your body starts utilizing the thiamine, you might feel a bit yucky, but keep going! It's just your body adjusting to being able...
  9. knitty kitty
    Wheatwacked, I found some studies, too.... both thiamine and niacin have effects on hyperlipidemia. Thiamine and niacin are both required in the Krebs Cycle. For every 1000 calories, you should get 0.6mg of thiamine. Those potato chips don't have any thiamine, they are empty calories. You need more thiamine to digest them than they contain...
  10. knitty kitty
    Blood tests aren't a reliable indicator of the amount of thiamine in the tissues. Blood levels often reflect how much thiamine you consumed in the previous 24 hours. Was yours a fasting blood test? "Vitamin B1, Whole Blood" https://www.labcorp.com/tests/121186/vitamin-b-sub-1-sub-whole-blood This article explains why blood tests for thiamine...
  11. knitty kitty
    Oh, Wheatwacked, I disagree that you're getting enough thiamine. Prediabetes is a symptom of thiamine deficiency. This article discusses a study done comparing differences in lipid profiles and blood parameters between type 1 and type 2 diabetics and nondiabetic controls. High dose Thiamine is shown to have a beneficial effect for reversing...
  12. knitty kitty
    Cody, It may be a thiamine deficiency. Thiamine is Vitamin B1, which your body needs along with magnesium and the other B vitamins, to provide energy for exercise and oxygen to your cells. Hypoxia, lack of oxygen in the brain and resultant headache, is caused by thiamine deficiency. "Effect of physical activity on thiamine, riboflavin, and vitamin...
  13. knitty kitty
    Well, I found this.... "High-Fat Diet Linked to Fewer Gallstones" https://www.medpagetoday.org/gastroenterology/generalgastroenterology/43474?vpass=1 And.... "Dietary Patterns and Risk of Gallbladder Disease: A Hospital-based Case-Control Study in Adult Women" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4438647/ Thiamine...
  14. knitty kitty
    Here's an article that explains how the "feel-good" brain chemicals are made in your intestines and how thiamine (vitamin B1) can help heal the intestines, relieve inflammation, and make those "sense of well-being" brain chemicals. "Thiamine Deficiency - A Potential Cause of SIBO and other Gut Dysfunction?" https://www.eonutrition.co.uk/post/thiamine...
  15. knitty kitty
    Not necessarily. A high fat diet, like the Autoimmune Paleo Diet, can help. Cutting down on processed foods and high carbohydrate foods are also helpful.
  16. knitty kitty
    MadMom, The Autoimmune Paleo Diet can help keep your gallbladder healthy. Make sure you get enough of the eight B vitamins which are water soluble and must be replenished daily. Think about taking extra vitamin B1, Thiamine, which helps supply your body with energy and enzymes needed for your body to function properly. Thiamine deficiency has been...
  17. knitty kitty
    MADMOM, You mentioned in another post you had baked eggplant with olive oil. Celiacs can have problems digesting fats. The gall bladder (on your right side under ribs) secretes bile to help with fat digestion, but Celiacs frequently have gallbladder dysfunction. Something to ask your doctor about. Be sure you use quality olive oil, not one that...
  18. knitty kitty
    Xniehtan, I could not bear to part with the wooden chopping board my mother had given me, so I tried rubbing it with lemon and coarse kosher salt like in this video. Maybe I'm not as sensitive as others, but this allowed me to keep my wood board along with a sweet memory of my mother. It's worth a try. Maybe shelf liner paper...
  19. knitty kitty
    Wheatwacked, Thought you might be interested in these articles.... "Thiamine Deficiency Causes Intracellular Potassium Wasting" https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/ And... "Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body...
  20. knitty kitty
    ButWhatCanIEat, Increased blood pressure, rapid pulse rate, and migraines were the symptoms I had at the beginning of my experience with thiamine deficiency. These are symptoms of wet beriberi. My doctor threw prescriptions at the symptoms, high blood pressure medications and diuretics. These medications are known to exacerbate thiamine deficiency...
  21. knitty kitty
    Robotman2009, Dairy can cause a reaction identical to a reaction to gluten in some lucky people.
  22. knitty kitty
    Pokey, I found an article or two.... This one explains the how PPI's can affect vitamin and mineral absorption..... I'm wondering if magnesium deficiency or B12 deficiency could be the cause of your ongoing nausea and fatigue. "Proton pump inhibitors and risk of vitamin and mineral deficiency: evidence and clinical implications" https...
  23. knitty kitty
    I'd rather try a low histamine diet and the Autoimmune Paleo Diet. Lots of people just starting out on their diagnostic journeys seem to have reactions to a wide variety of foods. Mast cells "spit out" histamine at the slightest provocation in Mast Cell Activation Syndrome. Many foods on the FodMap diet were intolerable to me because they were...
  24. knitty kitty
    You can have Celiac Disease and DH without gastrointestinal symptoms. Sometimes DH is the only symptom. It can be difficult to properly biopsy and diagnose DH because the sample must come from near a DH blister, not on top of it. So having one positive is all you need. Having normal anti ttg and IgA is great! Shows you're probably not getting glutened...
  25. knitty kitty
    Jesse, Welcome to the forum! Hope we can direct you to answers here. What do you include in your diet? Do you include dairy or nightshades (tomatoes, potatoes, peppers, eggplants)? Are you experiencing diarrhea or constipation? Have you tried the Autoimmune Paleo Diet? I found it very healing. Have you been checked for vitamin and mineral...
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