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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @pokey449 High dose thiamine supplementation is needed to reverse thiamine deficiency. High dose Thiamine is 500 mg or more (some take 1000 mg or more) a day for weeks to months. I started with 100 mg three times a day and added 50 to 100 mg until I was up to 1000 mg a day. I took 50 - 100 mg every three hours. Smaller doses throughout...
  2. knitty kitty
    @pokey449, I take Benfotiamine and Allithiamine....... over the counter vitamins. https://www.lifeextension.com/vitamins-supplements/item00925/mega-benfotiamine?gclid=EAIaIQobChMI4p2A8eWB8AIVaTizAB2I0wEWEAQYASABEgJhMfD_BwE And.... https://www.lifeextension.com/search#q=Allithiamine&t=coveo4A2453FD Imho, doctors...
  3. knitty kitty
    @pokey449, Here's an article that explains how the vagus nerve controls your digestive tract. Without enough thiamine, things don't work right. Thiamine is needed to make and secrete CCK, digestive enzymes, and insulin, among other things. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/ And...
  4. knitty kitty
    @pokey449, There's a connection between gallbladder problems, SIBO, continuing gastrointestinal problems band thiamine insufficiency. It's called Gastrointestinal Beriberi. Ask your doctor. Since blood tests aren't accurate, the best test for thiamine deficiency is a rapid response to thiamine supplementation (500mg/day) for several weeks. ...
  5. knitty kitty
    "Be well: A potential role for vitamin B in COVID-19" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ Oy! TAKE YOUR VITAMINS!
  6. knitty kitty
    @Emiandgabesmom, Celiac is genetic. Emi and Gabe need to be tested as well. Blood tests are not accurate for vitamin deficiencies. While blood levels may show normal levels, tissues and organs are deficient, giving their vitamin stores to the blood to supply the brain. Nsaids can cause continuing damage to your digestive system. Thiamine...
  7. knitty kitty
    Perhaps this will be of interest to you.... "Understanding nutrition, depression and mental illnesses" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/#!po=63.7500
  8. knitty kitty
    Niacin (Vitamin B3) helps with DH, but you have to take the kind that flushes (250mg/day). Avoiding foods high in iodine (shellfish, seaweed, iodized salt) reduces flavours.
  9. knitty kitty
    I praise G* d for Celiac because it's a disease that doesn't require pharmaceuticals or surgery to correct. We simply need a good diet. Here's my (other) favorite site... information from Dr. Marrs and Dr. Lonsdale made a huge impact on my life. https://www.hormonesmatter.com/contemplating-cyclic-vomiting-syndrome/ Keep us posted!
  10. knitty kitty
    I suggest you look into thiamine supplementation. Kidney disease is connected to not having enough thiamine (Vitamin B1). Talk to your doctor about supplementing. Google "thiamine and kidney disease" https://pubmed.ncbi.nlm.nih.gov/30182293/
  11. knitty kitty
    @lindseyg930, Welcome to the forum! Yes, even though your daughter is very young, I think an endoscopy is warranted in this case. Definitely to check for Celiac Disease, but also for other problems. One poster's daughter had a twist in her intestines that would not have been found without an endoscopy which once untwisted she improved dramatically...
  12. knitty kitty
    Thiamine and Niacin help peripheral neuropathy!!! All the B vitamins work together. Add high dose (+500 mg) thiamine and 250 mg of niacin (and some riboflavin and biotin). Those methylated forms of Cobalamine and folate and P5P are available separately online and much cheaper. Thiamine and niacin are needed to provide energy and enzymes...
  13. knitty kitty
    @Collette38, I had trouble absorbing Vitamin A from oil filled capsules. Fish allergy prevents me from taking cod liver oil which is a good source of both Vitamin A and D. Celiacs have trouble absorbing fats. I found capsules of the dry form of Vitamin A online and was able to absorb it better that way. I like keeping my Vitamin D in the 70...
  14. knitty kitty
    Welcome to the forum,@Sambozzi, Have you discussed taking a genetic test with your doctor? Testing positive for some of the most common genes related to Celiac and improved health on a gluten free diet is frequently accepted as a diagnosis for Celiac.
  15. knitty kitty
    Thought this might be of interest..... "Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/
  16. knitty kitty
    @trents is correct. The B vitamins are water soluble and must be replenished every day because they can't be stored long. Insufficiency of thiamine can occur in as little as nine days. Vitamin A is a fat soluble vitamin that can be stored in your liver. It can take years to deplete your vitamin A stores. Too much vitamin A can be bad...
  17. knitty kitty
    Noticed another boo boo. A blood test for anti-Tissue transglutaminase antibodies is used to diagnose Celiac Disease. Sorry.
  18. knitty kitty
    Thanks, @trents, Tissue transglutaminase is produced during inflammation, but also becomes part of the inflammation process. The function of tissue transglutaminase in celiac disease https://pubmed.ncbi.nlm.nih.gov/22326684/ "Tissue transglutaminase (tTG) is a calcium dependent ubiquitous enzyme which catalyses posttranslational...
  19. knitty kitty
    Food manufacturers frequently use "meat glue" to stick together processed meats so that they will hold their shape. It is used in chicken nuggets, sausage, luncheon meats. "Meat glue" is often used in yogurt, ice cream, baked goods and the like to improve texture. It is used in gluten free facsimile foods, like cookies, to improve texture. "Meat glue...
  20. knitty kitty
    I agree with @CMCM that getting a genetic test should be a big part of the diagnostic process for Celiac Disease. Granted, not everyone who has the genes for Celiac Disease actually gets Celiac, but for those that are having symptoms and seeking medical assistance, those should be tested. A positive result for one of the most common Celiac genes with...
  21. knitty kitty
    Here's the case studies and articles... "Gastrointestinal beriberi: a forme fruste of Wernicke’s encephalopathy?" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6040496/ And... "Elevated Lactate Secondary to Gastrointestinal Beriberi" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ And a variety of thiamine a...
  22. knitty kitty
    Welcome to the forum! I'm agreeing with @trents, you only need one gene for Celiac Disease. As I understand it, (knowledgeable others correct me if I am not correct), HLA DQ 2.2 heterozygous reacts to a smaller subset of gluten proteins than HLA DQ 2.5, but it still reacts to gluten. In your googling, did you find this article to explain...
  23. knitty kitty
    @Emiandgabesmom, Welcome to the forum! Would your doctor do a DNA test to see if you have any of the most common genes for Celiac? A positive test for a Celiac gene and improvement on a gluten free diet is sometimes accepted as a basis for diagnosis. Few doctors have experienced Celiac Disease firsthand and don't understand the extent...
  24. knitty kitty
    Benfotiamine, Allithiamine and thiamine HCl are available through stores on line, like at Amazon. I take several smaller doses throughout the day and with meals for a cumulative high dose total over the course of the day. Blood tests for the B vitamins are not always accurate. Blood tests for thiamine often reflect how much thiamine you've consumed...
  25. knitty kitty
    I have a problem with nightshade vegetables: potatoes, tomatoes, eggplant and peppers. Seems there's chemicals in nightshades that contribute to leaky gut syndrome in a cumulative way. Here's more.... Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov...
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