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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. Can be a symptom of thiamine deficiency. Thiamine is needed to process carbohydrates into energy. Muscle weakness is a symptom of thiamine deficiency.
  2. I took regular B-Complex vitamins and didn't feel much different. I kept researching and found that when you have a deficiency of thiamine, the thiamine transporters that help thiamine get into the cells turn off and don't function. In order to get the Thiamine transporters to turn back on, you have to flood the body with thiamine so thiamine can "force...
  3. Elevated liver enzymes and thiamine deficiency My doctor accused me of lying about drinking, but I do not drink alcohol. I have never been able to tolerate it. It turned out to be Thiamine Deficiency! Alcohol consumption can cause thiamine deficiency because alcohol inhibits thiamine absorption in the intestines. Abnormal liver enzymes occurs...
  4. Sharon, The same thing happened to me. My doctor accused me of lying about drinking, but I do not drink alcohol. I have never been able to tolerate it. It turned out to be Thiamine Deficiency! Alcohol consumption can cause thiamine deficiency because alcohol inhibits thiamine absorption in the intestines. Abnormal liver enzymes occurs in...
  5. Azure, I did the same thing. I took regular B-Complex vitamins and didn't feel much different. I kept researching and found that when you have a deficiency of thiamine, the thiamine transporters that help thiamine get into the cells turn off and don't function. In order to get the Thiamine transporters to turn back on, you have to flood the body with...
  6. Wheatwacked, Suzisqueue, and others, PLEASE get checked for low thiamine (erythrocyte transketolase test)!!! http://www.hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ Celiac Disease causes the Thiamine transporters to malfunction. Thiamine transporters allow thiamine into the body's cells to make energy so they can function...
  7. Dima Salahi, Yes, I do feel your agony. I understand. Please get checked for vitamin and mineral deficiencies as part of proper follow up care for Celiacs. Due to damage to our intestines, we may not be absorbing enough vitamins, minerals and other nutrients, like healthy fats. Our bodies' way of correcting deficiencies is to crave the foods containing...
  8. Azure, As an athlete, you have a higher metabolic need for thiamine, riboflavin, niacin, and pyridoxine. These are all members of the group of B vitamins. They are all water soluble, can not be stored in the body for long and need to be replenished every day. You use up more thiamine, pyridoxine, and riboflavin when you exercise and when you...
  9. Wheatwacked, You may have difficulty with your potassium levels because you are low in Thiamine. See this article.... https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/ Dates are a better source of potassium than bananas. Charles, Do try to alter your diet like GFinDC suggested. Potatoes...
  10. Kimble, You only need one gene to be Celiac. It's like being a little bit pregnant. The egg white, onion, garlic, oregano, and cruciferous vegetables (cauliflower, kale, cabbage, broccoli, etc.) are all high in sulfur. Celiacs often become sensitive to foods (and medications) with high sulfur contents. And that horrible gas is a result of...
  11. Depends on your transit time. Gluten causes me to have gastroparesis (where your intestinal muscles don't squeeze the food through as they normally do). So whatever is ahead of the gluten slows down or stops moving. And there's bloating. And about two to four days later, that food comes out, with diarrhea behind it from the gluten containing food, or...
  12. How about MRE's (Meals Ready to Eat) like the military uses to feed troops on maneuvers? Foil pouches of long shelf life foods. And there's freeze dried things. Astronaut ice cream is pretty cool. (Pun intended 😸) Emergency food buckets are sold on Amazon. And jerky, beef, turkey, bison, etc. You'd rattle if you swallowed 200 ca...
  13. Thought this article might help.... And this one....
  14. lanlanonearth, I do agree that "Knowledge is power." Educating yourself about nutrition is essential in Celiac Disease. Since there's so much to learn about nutrition and diet in Celiac, let me recommend a book I found tremendously helpful in tying things together, for adults and children. "The Paleo Approach" by Sarah Ballantyne.... https...
  15. Beste28, You may be low in thiamine, vitamin B 1. The anxiety, insomnia, bladder weakness, constipation, Gerd, acne, tinnitus, tingling, twitching, ascending burning feeling, and all the rest can be attributed to deficiencies in thiamine and the other B vitamins and minerals thiamine works with. I had many of the same symptoms. SSRIs and many...
  16. JoLuvsFurries, A good rule of thumb is to drink a glass of water every time you visit the loo. Also discuss with your doctor about checking for vitamin and mineral deficiencies as proper follow up care for Celiacs. Magnesium and thiamine deficiencies can cause constipation. Make sure you get plenty of healthy fats, omega-3's, in your diet...
  17. lanlanonearth, That's great you're giving him more foods with lots of fiber. Be aware, some Celiacs have trouble with corn and other grains besides the gluten containing ones, wheat, barley and rye, and sometimes oats. Dairy can cause bloating and gas. You might want to keep him off a lot of carbohydrates (like the beans, sugar and juice). ...
  18. But Lemons11's symptoms can cover so many things, I don't think the health center would turn him away from at least a telehealth appointment, especially if he's got all his homework done (complete list of symptoms, food diary, etc.) which makes it easier on the health care workers. There are home test kits for Celiac (stool, genetic, etc.) that might...
  19. Lemons11, You need to stay on a gluten containing diet for right now. Celiac Disease causes our bodies to make antigens to gluten. These anti-gluten antigens can be measured with a variety of blood tests. If you stop eating gluten, your body will quit making the antigens and the blood tests won't be accurate. Be sure to ask for the full panel of...
  20. lanlanonearth, One of the ways the body protects itself after ingesting something irritating or harmful to it, like gluten, is to pack it together and stay away from interacting with it. This often results in constipation and hardened stools. You should make sure your son consumes water with meals. Sipping water with meals helps distribute digestive...
  21. Hello, sweeterin, Have you had a DNA test for the Celiac genes? If you've got one or two of the most common genes for Celiac, you may want to assume you have active Celiac Disease and that the damage just hasn't progressed to obvious severe damage. Celiac Disease causes malabsorption which can lead to multiple vitamin deficiencies. Thiamine...
  22. Kksandy71, Many newly diagnosed Celiacs suffer from vitamin and mineral deficiencies. Have you been formally diagnosed with Celiac Disease? Testing for vitamin and mineral deficiencies is part of proper follow up care. Magnesium helps relax those cramping muscles. And most of the B vitamins, especially thiamine, niacin, and pyridoxine (B1,...
  23. Cyclinglady, Thank you so much for sharing the "blockbuster level information" as Trents called this study! It's really cutting-edge! I'm so glad to see in-depth studies like this being done. I admire you all the more for being open-minded to new information. I must admit my first reaction was something my meemaw used to say "Well, knock me...
  24. Thanks, Posterboy, for starting a new thread about thiamine. I have found a video of Dr. Chandler Marrs, the coauthor with Dr. Derrick Lonsdale, of the book "Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition." Dr. Marrs in person explains the importance of thiamine and how thiamine deficiency is involved in disease. ...
  25. Plumbago, I apologize for offending you. I will be pleased to continue a discussion on thiamine on the thread Posterboy has so kindly started. Knitty Kitty
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