Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Slight Constant Pain In A Child

Sverkat

Recommended Posts

Sverkat Newbie
Sverkat
Posted

Hi, my 4 year old daughter was diagnosed as a celiac almost 2 years ago and since then she has been on a strict gluten free diet. She started growing much better, her personality improved, and her health clearly improved. For the past 2 months though, it has been bad again. First she started getting diarrhea 2-3 times a day for about a month. Then 2 weeks of feeling fine. And now - for the past 2 weeks she keeps complaining of stomach pain. Not serious - she goes to school, she plays, she laughs. But periodically she says - my tummy hurts. She is not constipated nor does she have diarreah. And she is not making it up - once or twice she ran to us saying "my tummy doesn't hurt anymore"!

 

I'm now terrified - could this be cancer?  The doctors told us that some cancers are related to celiac. What kind of tests do I even ask for now?  Help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

I don't think its cancer. I do think, however, that she may be developing an intolerance to something she is eating. Keep a food dairy of everything that she eats. This will help connect the dots, if you will.

 

Another thought is that she is somehow being CC'd at school.

nvsmom Community Regular
nvsmom
Posted

I too doubt it's something serious. Is it possible that gluten has come into her diet somehow? I have been glutening myself, at low levels, with spicy McCain fries that I could have sworn I checked the label of... I've been having a few every week or so and after 2 months, my stomach aches were very frequent again. Maybe if you triple check the labels everytime you use it, you'll find something.

 

Good luck.

mommida Enthusiast
mommida
Posted

My daughter was diagnosed Celiac about 16 months old.  Went on a strict gluten free diet and everything was fine until she turned 6.  Then it seemed as if she was getting glutened.  "D" started back up and she complined her stomach hurt.  Made myself crazy trying to find hidden gluten.  The she started vomitting.  Made appointment went ped. gastro.  3 month waiting list.  She was vommitting up to 5 times a day, mostly right after eating.  She was diagnosed with Eosinophilic Esophagitus.  Younger patients just say they have a "tummy ache".  Symptoms match Celic.  There is now a known connection to Celiac.

 

With these symptoms there is a list of "usual suspects".  Some of these you can start testing for at the ped.

parasites (you can get the collection kit and lab orders from ped.)

H. Ployri

congenital defect

other food intolerances

hernia (more of a suspect with vommitting)

Eosinophilic gastrointestinal disorder (eosinophils can be damaging different parts of GI track and would be diagnosed specifically to that area)

abdominal migraines (was also a possibility ~ but I did not follow up with nuerologist after diagnoses of EE)

 

A endoscopy with biopsy can rule out or diagnose at this point.  I also suggest a food journal.  What is consumed, where, activities, amounts, ingredients, symptoms, airborne allergy alerts,and BMs?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,083
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...