Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Bad Dreams And Fear


Dozey

Recommended Posts

Dozey Apprentice

Since I have been ill I have been having trouble with bad/ disturbing dreams, waking between 3- 5am ish and being full of fear. My hands are clenched and my shoulders up around my ears! Then I can't get back to sleep and feel awful for the rest of the day. It doesn't happen every night and I'm wondering if it has to do with what I am eating. I suppose it would be an idea to keep a food diary but I don't know what to look for when. Does anyone have any ideas please? Would it be something I had at lunch or dinner, how long would it take for food to affect me like that. Grateful for any ideas. Thank you

Jo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Well, Jo it looks like every time you post a symptom, you get me answering "I had that too" . LOL

 

I had horrible insomnia, thrashing around in my  bed in the middle of the night,  finally getting up and walking round and round my house for 3 years. It was insane. 

Now, I sleep through the night (and I have never been able to do that in my entire life)

 

Your body is revved up on gluten. You have other neurological symptoms, so it is understandable that you also have disturbed sleep.

Your adrenal glands are over-taxed from the stress of being ill, malnutrion and pain. 

I know you are waiting for your test results, but everything you tell me says you are one of us.

 

Here are some Pub Med articles that discuss anxiety, migraines, ataxia etc, in relationship to gluten and celiac.

 

Open Original Shared Link

Dozey Apprentice

Thanks IrishHeart, it's such a relief to know someone else knows what I'm talking about. My son often says it will be nice when I start making sense

I will take a look at that article, and thank you for always responding.

Jo

IrishHeart Veteran

There are many threads on here about sleep problems, bad dreams, etc. Nope, you are not alone!

You are making sense, hon--to us, anyway. :)

Dozey Apprentice

There are many threads on here about sleep problems, bad dreams, etc. Nope, you are not alone!

You are making sense, hon--to us, anyway. :)

Thanks again, this is such a supportive site.

Jo

GFinDC Veteran

Hi Dozey,

 

Insomnia does seem to happen to quite a few of us.  Another thing that people talk about with muscle tension is magnesium deficiency.  Magnesium helps relax muscles.  /too much will cause D tho.  Might be something to experiment with.

 

Foods don't always give noticeable symptoms right away.  Sometimes effects can build up slowly and get worse over time.  Like weeks, not hours.  Those can be the tricky ones to figure out.  You can't nessacarily find those by stopping them, for a day either.,  It is better to stop suspicious foods for a month at least.at least.  An elimination diet is good tool for finding food reactions.  But it wouldn't be very useful as long as you are still eating gluten.  Maybe after your gluten-free diet start it would be something to consider.  But even then it would be better to  wait 6 months  or so before doing one.  Things can be kind of unsettled for 6 months to a year after starting the gluten-free diet.There are some things like dairy that are known to cause problems for many celiacs though.  It wouldn't hurt your testing to stop dairy now.  Dairy can cause insomnia in some people.

 

Dozey Apprentice

Hi Dozey,

 

Insomnia does seem to happen to quite a few of us.  Another thing that people talk about with muscle tension is magnesium deficiency.  Magnesium helps relax muscles.  /too much will cause D tho.  Might be something to experiment with.

 

Foods don't always give noticeable symptoms right away.  Sometimes effects can build up slowly and get worse over time.  Like weeks, not hours.  Those can be the tricky ones to figure out.  You can't nessacarily find those by stopping them, for a day either.,  It is better to stop suspicious foods for a month at least.at least.  An elimination diet is good tool for finding food reactions.  But it wouldn't be very useful as long as you are still eating gluten.  Maybe after your gluten-free diet start it would be something to consider.  But even then it would be better to  wait 6 months  or so before doing one.  Things can be kind of unsettled for 6 months to a year after starting the gluten-free diet.There are some things like dairy that are known to cause problems for many celiacs though.  It wouldn't hurt your testing to stop dairy now.  Dairy can cause insomnia in some people.

Hi and thanks for your reply. I am finding all this a bit confusing and scary. There is so much to consider, especially as I don't even know if I am celiac yet. I just want ro feel better and be the old me again.

Jo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

... I just want to feel better and be the old me again.

Jo

 

Ah, I can just hear Butters ( South Park ) saying that!  :)  I know how that is Dozey.  It may be you are lacking some essential vitamins and minerals.  When we don't get enough of the right stuff in our diets, or it isn't absorbed due to gut damage, our bodies have problems.  Our brains are not immune to nutrition problems.  Your doctor can do blood tests on your nutrient levels.  If you are low no a couple f them there has to be a reason.  People with celiac tend to have problems absorbing the fat soluble vitamins.

Dozey Apprentice

Ah, I can just hear Butters ( South Park ) saying that!  :)  I know how that is Dozey.  It may be you are lacking some essential vitamins and minerals.  When we don't get enough of the right stuff in our diets, or it isn't absorbed due to gut damage, our bodies have problems.  Our brains are not immune to nutrition problems.  Your doctor can do blood tests on your nutrient levels.  If you are low no a couple f them there has to be a reason.  People with celiac tend to have problems absorbing the fat soluble vitamins.

Well I do have b12 deficiency so I suppose there could be others. I am waiting results for vit D def now. I don't know what other things, apart from celiac, were asked for, but the nurse that took the blood said the doctor had ordered a few tests. Have to wait till Friday to find out. I have been so frightened by all the strange things I have been feeling but reading othere peoples experiences have helped that a bit. I think I am still coming to terms with the fact I have some illness or other. I am quite thin now having lost 4 st over the last year and a half and that's a bit frightening too. Thank you for your reply.

Jo

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,082
    • Most Online (within 30 mins)
      10,442

    Joe B
    Newest Member
    Joe B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...