Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Do I Need To Do A Gluten Challenge After Being Low-Gluten?


thedarkestflame

Recommended Posts

thedarkestflame Newbie

I've been eating reduced gluten since January, but not fully gluten free.  I haven't been eating it every day, but maybe once a week a small bowl of pasta or a slice of pizza, a granola bar here and there (maybe every other day?), and maybe one beer per week.  I also haven't been avoiding foods that contain hidden gluten, like sausages, soups that use flour, etc.  Does that count as typical gluten consumption or do I need to do a gluten challenge?  I've started loading up on it a bit more about two weeks ago, cereal every morning, and a granola bar in the afternoon...  Should I wait a few weeks to test, or should this be enough seeing as I wasn't fully gluten-free before.   Before January it was the full cereal in the morning, sandwich for lunch and pasta for dinner.

 

I'm about 99.9% sure I have Celiac (thyroid condition, anemia on and off throughout my life, hand/foot swelling after eating gluten, joint pain/stiffness, and hand/arm numbness, GERD/reflux within an hour of eating wheat, depression during months where we rely more on bread/pasta than on meat/veggies, random nausea/vomiting, eczema next day after eating wheat.. you'd think my doctor would have connected the dots by now?).  I need the piece of paper to get my family to respect me wanting to be gluten-free.  My husband does the cooking and unless I have an actual medical condition gluten-free is just a diet that I can cheat on a couple times a week.  He doesn't believe that it affects me the way it does and often my only choices are the pasta he made for dinner or just not having dinner at all (or having sliced cheese and pickles for dinner). 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

I don't think there is any real way to know if you were consuming enough gluten, by eating gluten-light, to have a positive celiac test.  People produce autoantibodies at different rates so it would be tough to predict.

 

I would guess that you are probably eating enough, especially since you have been increasing your gluten consumption to at least 2 servings a day.

 

Good luck with the tests. I hope you get very clear results.  :)

Deaminated Marcus Apprentice

No the doctors don't connect the dots  :( .

The specialists are even worse as they are so focussed on the one organ they treat.

 

 

On the bright side it's a good time to do a Celiac blood panel before going completely gluten free.

Just make sure you are eating bread daily in the weeks before the test.

I read it's 4 slices of bread for 3 months for those who were gluten free so maybe you won't need to wait as long.

It's good to mix whole wheat and white bread and pasta.

 

 

 

This is the  Celiac panel that I did:

 

Total IgA
Transglutaminase IgA         tTG-IgA
Deaminated Gliadin IgA     DGP-IgA
Deaminated Gliadin IgG     DGP-IgG

 

 

 

It's best to check with your lab first and then give the lab's Celiac test panel code to your doctor

as he problably won' t know what test to give and he'll just give the tTG test alone (not good enough).

 

PS: Potatoes can replace pasta.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,082
    • Most Online (within 30 mins)
      10,442

    Joe B
    Newest Member
    Joe B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...