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answerseeker

Confused About The Tsh Guidelines, Are My Levels Good?

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If your EKG is normal, it is quite possible it is from being ill from the celiac. I suspect it will regulate. If not, see a cardiologist for an ultrasound

of your heart to make sure.

 

I wore a holter monitor many times throughout the years. Never could determine what it was causing my erratic beats and thudding heart.

 My mom was the same. They said she had AFib. They said maybe I had that, too. Nope.

Both of us are fine off gluten.

 

I know another woman who nearly had a pacemaker installed in her 20s. Turns out,

she had celiac (which an astute doctor discovered when he was doing her pre-op blood work and physical) and after being gluten-free, her heart rate

was normal again. She would have had an operation and a pacemaker ---for nothing. 

 

Your children should all be tested for celiac, now that you have a diagnosis, hon.

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read the thread kind of quickly, but it would be worth getting your Vitamin K checked too.  I bruise easily, but I wasn't anemic or low in iron however I am Vitamin K deficient so that was my answer.  good luck!

 

My GI doc just keeps telling me everything will get back up by following a gluten free diet so I suppose if I'm deficient in vitamin K it's the same treatment. I am meeting with a RD (dr referred) tomorrow so I'm sure she will get me on a good eating plan to get my levels up. That would be the treatment for it correct? Has yours gone back up now?

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you're right that the hope is it will increase on the gluten-free diet  :) when I had Vit. K re-checked at 3 months gluten-free I was still deficient, but my GP said not to take a supplement for that one and increase my green veggies even more even though I had been eating a whole bunch.  My Vitamin D was still a bit low at 3 months, so I got a 50000 iu supplement once a week.  Not as much seems to be known about the effects of low Vit. K versus low Vit. D.  

 

Celiac antibody panel, Vit D and Vit K will be checked again around Nov/Dec when I call for a script from my GI, but I do have a script from my GP to have my Vit. D tested in a few weeks to see the effects of the 50000 iu supplement.  Hopefully I'll see a big increase in that one!  Hope your appointment with the RD goes well tomorrow!!

 

My GI doc just keeps telling me everything will get back up by following a gluten free diet so I suppose if I'm deficient in vitamin K it's the same treatment. I am meeting with a RD (dr referred) tomorrow so I'm sure she will get me on a good eating plan to get my levels up. That would be the treatment for it correct? Has yours gone back up now?

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I wouldn't underestimate the vitamin deficiencies when it comes to them causing problems. And though the malabsorption problems would improve in the long run, there are some vitamins that are more difficult to get straightened out, like B12 which is often added to the breads that we are no longer eating, and becomes more difficult to absorb as we age.

Vitamin deficiencies are just like hormones that just being within the normal range doesn't necessarily mean that you'll be symptom free. Being low in the normal range can still cause problems.

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I had  serious B-12, vit D and  folate  deficiencies.

I was able to turn them all around after a few months of gut healing and appropriate supplementation.

 

Whatever you guys do, don't over-supplement without knowing what you really need. Despite what some people say, you can

flood your system and there can be consequences. I had burning neuropathy from too much B6 and my B-12 skyrocketed and

my GI doc said "STOP Taking those right now!" My levels are fine now and I have no symptoms that suggest anemia at all.

 

I had iron and B-12 anemia for 20+ years.

 

Make sure your doc follows through with checking your levels.

You have to be your own advocate sometimes with celiac because often, the docs do not know enough about it

or what follow-up care is required. Even the top celiac specialists are looking at ways to establish guidelines for the medical

profession to follow. (rather silly they have to do a "study" and a conference over it, but this is the AMA we're talking about).

 

Not sure where you live, AnswerSeeker, but people on here report that RDs in the US have not been helpful with a "celiac-diet"  in the past. I hope the one you see

is better informed.

 

Shelley Case and Tricia Thompson are two recognized celiac RDs. Check out their websites (and Case's book) for some great info. 

 

A terrific book to read is Real Life with Celiac Disease by Melinda Dennis and Daniel Leffler. They cover nutrition and supplements in there --the thyroid, etc....and there are dozens of articles by celiac specialists that are truly worth reading.

 

Just some suggestions!

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Thanks I will read that next. I'm reading Celiac the hidden epidemic right now which I'm going oh wow that's from celiac! But again the over 300 symptom thing can be so much. The drs think your crazy or hypochondriac for mentioning all the seemingly unrelated symptoms

I told my primary dr about the weakness in my arms and legs and I had a hard time getting up my stairs in my home. Blow drying my hair would cause my arms to feel like Spaghetti after, i could barely hold the dryer up. He says well do you exercise :-/ I now have a new primary dr

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