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rsfc

Could This Be Celiac?

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For about the past 3 months I have these symptoms. I am male, 34. They are chronic but it seems I have better days and worse days where things flare up:

 

 

it all started with back pain and stuff that felt like a urinary tract infection (tested negative) it progressed to the following:

 

Loose, soft very dark stool

Just once I had a very bloody (red) stool

Usually a bit constipated and then go a lot when I do go.

Urine seems to be more bubbly/foamy than I remember.

Low abdominal/pubic pain (usually in the front or back sides, below the belly button). The pain usually accompanies going to the bathroom (before or after or both). Sometimes pain is present sometimes not at all.

Trouble breathing that may be associated acid reflux (my guess). It's linda like asthma (which I have) but kinda not.

infrequent sore throat

infrequent night sweats

When I am having the breathing issues my skin on my face, shoulder and back tends to feel flushed, tight, sensitive. Sometiems get like a hot flash sensation when it is at its worst.

Sometimes feel light headed, exhausted.

Alcohol seems to make it worse.

 

The main things that really frustrate me are the trouble breathing and the weird stool. It's obvious they are all related and all get worse in conjunction with one another.

 

I've been to the doctor multiple times, she thought H pylori/ulcer.

did lab work for h pylori twice (one was a false positive/borderline, the second was negative).

Had basic blood test, normal.

Had endoscopy to look for ulcer and test for pylori, nothing wrong.

I've also had a chest x-ray for breathing, nothing

and a kidney scan because I have a family history of PKD, nothing

 

I'm starting to get frustrated about going to the doctor, it is costing me a lot of money. No answers.

 

My grandmother has Celiac disease. I've had asthma all my life which I read can be related. When I google my symptoms things like celian, crohns, IBD, and even colon cancer show up. I'm frustrated and getting burnt out both by the symptoms and no diagnosis.

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The only way is go gluten free for at least a month, and see if u feel better. I know its hard and frustrating that no doctor really knows whats going on. Ive been there, one doctor suspected celiac, but i aint have the money to pay for a boipsy, so i just went gluten free and felt better. And now im with a new doctor that did bloodwork for celiac.

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You have to be eating gluten for weeks before taking a complete Celiac blood panel.    Here's a link that lists the specific tests for celiac disease:

 

http://celiacdisease.about.com/od/diagnosingceliacdisease/a/Celiac-Blood-Tests.htm

 

It would be worth testing if your Grandmother had Celiac Disease.  

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i got tested to rule out other things (like crohns, ulcer, etc) at the same time my doc was looking for my celiac dx.  cyclinglady is right - if you want an accurate test, you need to be eating gluten before you get tested, unfortunately.  i made the same move (going gluten free before i got tested - i was skeleton like and it was the last thing i was going to try before giving up and just dying..)  and my blood test came back negative.  my doc did not put me back on gluten for the endoscopy because i was gaining healthy weight (2lbs a month) and she didn't want to take a chance on me being sick/losing more weight.  she took into consideration my positive response to the gluten-free diet, which is also an indicator of celiac.  combined with visual damage to my intestines/digestive tract, she made her dx.  

 

your grandmother has it - it's genetic - there's a good chance you are on the right track.  i would get my vitamin levels checked, too :)  while you're at it :)

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     IGA/TTG is the test you are looking for. I got tested for half of it not the whole thing and ended up taking years more to get diagnosed. You need to be on a wheat based diet when you have the test. I had a biopsy and had pizza when coming out of anesthesia. It was the last wheat based pizza I ever ate. I'm feeling much better once diagnosed and following the diet. Celiac is genetic so there is a fair chance it is the culprit. Don't quote me but I think your chances are around 1/5 of testing positive? Anyway my dad had Celiac and so far I am the only child to have it out of five although I think all my siblings have stomach issues of some kind.

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