Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr's Advice Feels Fishy


Abthiede

Recommended Posts

Abthiede Newbie

Hello! I finally made it to a GI doc in my area. Based on my weak positive blood test results and symptoms, he does suspect celiac but prescribed an upper GI series and told me to eliminate gluten (which I have already). After reviewing the results he will order an endoscopy. Based on the knowledge I've gained from reading these posts, I asked him if eliminating gluten now would ensure a negative result on the endoscopy, but he said I wouldn't heal that fast. Can that be right? Additionally, I also have a mild dairy allergy and he "prescribed" Activia yogurt for probiotics. I asked if it was okay to eat yogurt with a dairy allergy and he said it's been processed enough it wouldn't bother me. Any one with a dairy allergy find Acitiva problematic?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rucko Apprentice

Hello. Do you know how long until you get the endoscopy? 

Abthiede Newbie

Hello. Do you know how long until you get the endoscopy?

Thanks for your response, Rucko. It depends on the results of the upper GI series, which I haven't yet scheduled. I haven't read anything on any celiac sites that mentions an upper GI series as a viable test for celiac so I'm a bit mired in doubt. I'm not sure the exposure to radiation, the dye milkshake, etc. are all worth it, especially if once I get an endoscopy my villi have already healed from eliminating gluten (provided they're damaged in the first place). This disease is such a psychological mind trick. I know I feel better without gluten, so it makes sense to avoid it. But somehow the diagnosis means so much. The only *real* reason I can think of pursuing a diagnosis is for the sake of my daughters who may end up in the same boat, and to make my husband stop rolling his eyes when I turn down pizza and beer.

GottaSki Mentor

You should not remove gluten before all celiac testing is complete - which includes endoscopy.

 

How long have you been gluten-free?

 

Do you know if you had a complete celiac antibody panel?  Any nutrient testing?

 

An endoscopy is usually the next step after positive (even weak) antibody test.

cyclinglady Grand Master

Here's some information about testing at UC San Diego's Celiac Center:

 

Open Original Shared Link

 

It mentions that you must be eating gluten until ALL diagnostic tests are completed!  My doctor told me to continue to eat gluten after my "weak" positive blood test until my biospy/endoscopy seven weeks later (which showed moderate to severe damage -- Marsh Stage IIIB).     

 

I've been allergic to whey and casein (milk proteins) for years.  I can not eat yogurt from a cow!  But, if you have a lactose intolerance (milk sugar) which many celiac disease patients often have due to villi damage,  you may be able to tolerate yogurt as the lactose is broken down.  If you're allergic, take a non-dairy/milk probiotic.  There are many of these supplements available.  

 

Why the upper GI series?  Does he suspect something else?  It won't confirm celiac disease.  

 

Good Luck.  Keep researching and be informed!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,994
    • Most Online (within 30 mins)
      7,748

    Gma4anna
    Newest Member
    Gma4anna
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...