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Burndee

Results From Blood Test

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My 2 year old daughter had diarrhea for 2 months, and we had a sample tested and it showed she was malabsorbing. She is in the 90th perecentile for weight and she has been growing fine, no issues except for the diarrhea. So we get recommended to a gastrologist and they do a blood test for Celiac, and it came back with the following, I don't have the results with me, this is what the nurse told me over the phone. We have an endoscopy scheduled for her the day after xmas.

 

TTG  13 (supposed to be less than 4)

IGA   Normal

Endoysial IGA  Postive

Endomysial Titer  1:10  > 1:5

 

The doctor said she thinks my daughter has celiac's and is just confirming with the endoscopy. I have never heard of Celiac before, and no one in my family or husband's family has had it that I know of, of course could have had it and not known. This just seems like it came out of the blue..I have been reading alot about it online and came across this forum.

 

So I guess my questions are, based on the results above, does it look like she has Celiac's or could something else produce those results? I guess part of me is worried that she might have something else wrong with her. Its still really hard to wrap my mind around.. but I'll do what I need to get my daughter better. Just wanted to see what you guys thought of the test results and if you think that its a for sure postive and I need to start preparing myself to go gluten free.

 

Thanks for any information or guidance in advance!!!

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With a positive tTg and EMA, it's pretty much a slam dunk for Celiac Disease.  You are lucky to have discovered the problem in a child so young, before years of damage are done.  Just be aware that in a child so young, the biopsy could come back negative because it can take a long time for enough damage to accumulate for a GI doctor to find.

Whether or not it's positive, your daughter needs to be very gluten free.  Make sure they take as many samples as humanly possible, from different areas of her small intestine.

 

Good luck and any questions you have concerning the diet, we are only too happy to help.  :)

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Thanks so much for the information! I wanted to make sure I was understanding them correctly. I for sure will be browsing this site alot it looks like. Just having someone else confirm makes me more certain that I need to getting prepared to go gluten free.

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This site explains who should get tested for Celiac:  http://www.questdiagnostics.com/home/physicians/testing-services/condition/celiac/who-tested

It includes a list of ailments that are commonly associated with Celiac.  If you have family members with these various issues, it could very well be that there is Celiac in your family and no one ever knew.

 

Aside from that I just want to echo Gemini - it's pretty definite that your daughter has Celiac and she's very lucky to have caught it so early.

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Yes. :( With those two tests it's a sure thing even if they miss the damage in the biopsy. The EMA is positive once the damage being attempted on the villi gets pretty severe - that test is often negative in early cases or in very young children.

 

I also had those tests positive and chose to skip the biopsy because it was pretty much a sure thing/diagnosis.

 

This report has more info on the tests on pages 10 to 13:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

Celiac is an autoimmune disease and AI diseases tend to run in families; if you have familiy members with thyroiditis, diabetes (type 1), lupus, rheumatoid arthritis... well, that's probably the side of the family that it is coming from.  You should consider getting your husband and youself checked for celiac disease, as well as any other children you have just in case someone has it and is symptomless - happens more often than one would think.

 

Welcome to the board.

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