Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Houston, Tx Doctor?


rduchess

Recommended Posts

rduchess Newbie

I just moved to the Houston area and absolutely love it!  I am undiagnosed but very sensitive to gluten.  I also have neurologic symptoms (pseudo seizures, muscle weaknes, peripheral neuropathy...) and a history of Hodgkin's Lymphoma, Breast Cancer, and Basal Cell Carcinoma.  Neurologic symptoms started the day after a severe intestinal reaction to a meal with wheat items.  It set off a chain reaction that initially was diagnosed as Guillian Barre Syndrome, but later progressed to respiratory failure and Breast Cancer. While I am now in remission (Praise God!) I am still plagued with multiple neurologic symptoms including seizures, that my dr. in Oklahoma was unable to diagnose...so they labeled me with "Conversion Disorder".  I am looking for a celiac doctor that can help with neurologic symptoms.  I also have a mother, sister, and daughter with undiagnosed gluten sensitivity.  If I can unravel this mystery, my whole family would benefit from better health. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

My doctor is in the Dallas/Fort worth area, but I can call them next week and see if they know any practices in the Houston area.  The University of Chicago center has a new doctor database but not many doctors had been added last time I looked at it.  Also, if there is a GIG-Gluten Intolerance Group chapter in that area, you can see who they go to as well.  Good luck! :)

Link to comment
Share on other sites
  • 3 weeks later...
Kath Urbahn Newbie

I just moved to the Houston area and absolutely love it!  I am undiagnosed but very sensitive to gluten.  I also have neurologic symptoms (pseudo seizures, muscle weaknes, peripheral neuropathy...) and a history of Hodgkin's Lymphoma, Breast Cancer, and Basal Cell Carcinoma.  Neurologic symptoms started the day after a severe intestinal reaction to a meal with wheat items.  It set off a chain reaction that initially was diagnosed as Guillian Barre Syndrome, but later progressed to respiratory failure and Breast Cancer. While I am now in remission (Praise God!) I am still plagued with multiple neurologic symptoms including seizures, that my dr. in Oklahoma was unable to diagnose...so they labeled me with "Conversion Disorder".  I am looking for a celiac doctor that can help with neurologic symptoms.  I also have a mother, sister, and daughter with undiagnosed gluten sensitivity.  If I can unravel this mystery, my whole family would benefit from better health. 

My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.  

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,186
    • Most Online (within 30 mins)
      7,748

    Grandma anna
    Newest Member
    Grandma anna
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoeBlow
      For 16 years I have relied on the website glutenfreedrugs.com to determine if a pharmaceutical is gluten-free. The website has been down for at least a week. Does anyone have any information about this outage, the status of the website founder and maintainer pharmacist Steven A. Plogsted or a phone number? I did not get a response for my email to glutenfreedrugs@gmail.com in October of 2022. Steven did respond to my emails in 2012. Thanks.
    • Beverage
      Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster.  I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs are doing this, my 19 year old step granddaughter got an official diagnosis here in US with just blood results a few months ago.
    • Beverage
      Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that. 
    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
×
×
  • Create New...