Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Archived

This topic is now archived and is closed to further replies.

CynthiaSt

So Discouraged, Hypoclycemic And Stomach Inflamation

Recommended Posts

I guess my suggestion that you see an endocrinologist was completely disregarded?  :(

oh well, I tried.

Best wishes!


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

Share this post


Link to post
Share on other sites

Hi IrishHeart,

     Please don't be offended. I am not making any final decisions on my next step until my doctor's appointment on Jan 21.

I am trying to be very educated as to my alternatives so I can make a good decision after the appointment. I certainly have not ruled out the endocrinologist.

   I am, also very interested in how people who have cured these problems have done it. We all have to help each other out on this journey and I appreciate your advice. Sometimes it takes months up here to get in to see these specialists. I have had to wait 3 months just to get the results from my scope.

Cheerio

CynthiaST

Share this post


Link to post
Share on other sites

Hi IrishHeart,

     Please don't be offended. I am not making any final decisions on my next step until my doctor's appointment on Jan 21.

I am trying to be very educated as to my alternatives so I can make a good decision after the appointment. I certainly have not ruled out the endocrinologist.

   I am, also very interested in how people who have cured these problems have done it. We all have to help each other out on this journey and I appreciate your advice. Sometimes it takes months up here to get in to see these specialists. I have had to wait 3 months just to get the results from my scope.

Cheerio

CynthiaST

 

I am not offended, Cynthia. :)   I am concerned for you, that's all.

An endo is the best resource for hypoglycemia and thyroid issues.

Best  wishes!


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

Share this post


Link to post
Share on other sites

Do the supplements upset your stomach or ulcer? My stomach gets totally inflamed when I take them. I am ok for 1 day, then I have terrible pain from the inflammation. I have even tried opening them up and putting them in mashed potatoes. But I can still only get away with it for 1 day. I want to take them. I just need to find a way that they won't cause such inflammation. Maybe my stomach is still healing from the gluten?

Cheerio

CynthiaST

I've been gluten-free almost three years. In the beginning, my stomach hurt and I was nauseous over many things. It took me six months to discover my "glutening symptoms"...headache/allergy feeling and cannonball in my stomach. At around 9 months-1 year it switched to stomach punch and two weeks of acid stomach. The hypoglycemia came in around 9 months?... No relation to gluten.

When I'd get the acid, I'd stop all supplaments except thyroid meds. Like you, it hurt and made things worse. Then I'd have to start up again - the acclimation to iron was the worst.

Now, at almost three years gluten-free and 9 months with higher t3/lower rt3 I can *mostly* continue my supplaments after a glutening. I take 1-2 days off rather than 2 weeks??? I am handling iron much better - no nausea.

I don't have other intolerances other than a weird intolerance of commercial mint flavored products, and too much gluten-free junk food makes me feel gross and generally teetering on hypoglycemia.

I did wonder, when my glucose was swinging, HOW I was going to make it. I felt so out of control, and it would hit so unpredictably. I hated it. I was so unexpectedly thrilled when it turned out to be t3. No one suggested it, no one told me that could be it....I'd read about some thyroid patients being mistakenly dxed type 2 because they weren't in hormone therapy....but never thought it could be me - ON therapy...with high rt3 blocking my cell absorption.

Talk about this with your doctors. Some nd's are knowledgeable about thyroid, others not so much. Most md's are reluctant to use t3 or combo therapy, and use TSH to dx thyroid...not good in this situation. If you ask compounding pharmacies for names of doctors who rx t3 and combo thyroid meds that's your best bet. Or, get on thyroid sites and ask for a reco in your area. That's how I found my "better" nd. Some people have luck with integrated or functional md's. Unless you are dxed diabetic along with thyroid, most thyroid patients I talk with don't see endocrinologists. There's a shortage or long wait lists to get in, and they trend to diabetes care/maintenance. Also, unless you have clinical Addison's or Hypoglycemia, they probably will not dig into it, from what I've head from other thyroid patients.

Hopefully, if it is your thyroid it will self correct if you can get nutrients up. Your thyroid needs d, iron, selenium, chromium, and b's to make and utilize thyroid hormone. I personally struggle with d and iron...but as they go up I can tolerate more thyroid meds...which is good (because I don't think my thyroid is doing much on its own). I do take supplaments for ALL if those. A good diet isn't enough for me, or most who are thyroid challenged. I can say liquid vitamins seem to go down easier. I wish i'd started on those.


Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.

Hashimoto's DX 2005.

Gluten-Free since 6/2011.

DH (and therefore Celiac) dx from ND.

Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

Share this post


Link to post
Share on other sites