Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

What Should I Do Guys?


glutenfreemomma188

Recommended Posts

glutenfreemomma188 Apprentice

Hey guys, 

I know I wrote something similar to this before but I have more information this time. 

I got tested for Celiacs disease back in September of 2012 and it came back positive, however, my doctor only did the IGA AND IGG test on me, he didn't do any other test. 

He then told me to go on a gluten free diet right then and there without any further testing. 

 

Now exactly 17 months later I did the same test over again being on a gluten free diet and my readings were all negative for having any antibodies. 

My question is this, since I only got one test and it was positive, is that in itself proof enough that I have celiacs disease or should I go on a gluten challenge?. 

 

Here are my readings in comparison: 

 

9/13/12

Tissue Transglutaminase Antibody:  My reading: 27.4 u/mL   (Normal reading is anything between 0-3.9)

Tissue Transglutaminase Aby IGG: My reading: 60.4 u/mL (Normal reading is anything beteen 0-5.9) 

 

2/26/14

Tissue Transglutaminase Antibody: My reading: 1.0 u/mL (This is because I was on a gluten free diet for 17 months)

Tissue Transglutaminase Aby IGG: My readoing: 7.1 u/mL (This is because I was on a gluten free diet for 17 months) 

 

I just want to make sure that I for sure have it or not but yet I don't really want to undergo all of this extra crap. 

Does this sound like it is Celiacs to you guys just by this one test?. 

 

Thank you

 

 

 

 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

Sounds like you have Celiac to me. You tested positive because you were eating Gluten. Your second set of test were negative because  your on a Gluten Free diet. I'd stick to the diet. Why go back to eating Gluten and get re tested? You have already tested positive. Sounds like your doing good on your diet. 

Link to comment
Share on other sites
NoGlutenCooties Contributor

What she said.  :)

 

What symptoms did you have before going gluten-free?  Did they go away?

Not all Celiacs have symptoms - I was one of the asymptomatic folks.  But if you had symptoms, went gluten-free, and your symptoms went away... That kinda confirms it.

Link to comment
Share on other sites
motheroftwins2010 Rookie

My GI told me that the TTG IgA test is almost never wrong when it is positive. Although for an official diagnosis it would need to be biopsy confirmed but if I were you I would not gluten challenge just to confirm something that is basically 98 or 99% a sure thing.

Link to comment
Share on other sites
RMJ Mentor

In 2012 your body was making antibodies against itself - definitely not a good thing. After removing gluten from your diet, your body is no longer attacking itself. Sounds like a great reason to continue gluten-free.

(I am in a similar situation. My GI doctor could not do a biopsy due to another health issue. The doctor handling the other issue was uncooperative).

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,459
    • Most Online (within 30 mins)
      7,748

    linda Jed
    Newest Member
    linda Jed
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
×
×
  • Create New...