Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How To Deal With Servers Who Don't Think Celiac Is Real

ChelseaS

By ChelseaS
in Gluten-Free Restaurants

Recommended Posts

beth01 Enthusiast
beth01
Posted

I got glutened at a Celiac Support group meeting in my area where everyone in our group was a celiac except for two people. I had figured if it was good enough for them, it's good enough for me.  It's more of a gamble than anything.  You are just playing Russian roulette with your health.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

I got glutened at a Celiac Support group meeting in my area where everyone in our group was a celiac except for two people. I had figured if it was good enough for them, it's good enough for me.  It's more of a gamble than anything.  You are just playing Russian roulette with your health.

There are celiacs who aren't very careful. I knew a celiac (biopsy dx'ed, fwiw) who would go ahead and eat peanut butter and other condiments that had been dipped into by gluten eaters. He said, "I'm not THAT sensitive."

 

Some celiacs don't understand that even if they aren't having symptoms, it doesn't mean that damage isn't being done. 

IrishHeart Veteran
IrishHeart
Posted

I got glutened at a Celiac Support group meeting in my area where everyone in our group was a celiac except for two people.

 

omygosh....How on earth did that happen?? I

Adalaide Mentor
Adalaide
Posted

Last Christmas the local celiac support group, like every year, did a cookie party in December. Everyone was invited to make cookies and bring copies of the recipe to share. I was all set to go... then chickened out at the last minute. I thought about the celiacs who share kitchens with wheat eaters (and even though I did at the time I wouldn't trust someone else who does that I'm not buddies with) or who do the condiment thing or who missed something on a label or who buys regular oats because they don't know better or any one of the dozens of mistakes I've seen people talk about here. And I was like forget this, I don't want to be sick for Christmas!

 

Beyond my husband, a select group of people I've met here and trusting restaurants that have good practices, I don't let others cook for me. I often find myself saying (usually to my clueless MIL who just does. not. get. it.) that trust is a luxury I can't afford. It took about a year for me to get to the point that I trust my husband completely, and in that time he once brought me candy, said it was safe and I popped two pieces in my mouth before reading the label myself and freaking out because malt. GAH! (I forgave him because he was just trying to make me happy  :) and it was ultimately MY fault for not looking. :)) But little mistakes like that are things anyone can miss and why I'm a total control freak about my food.

beth01 Enthusiast
beth01
Posted

My glutening happened when I went to a supposed "safe" restaurant for a celiac support group meeting.  My daughter and I had the same thing, I got sick she didn't.  She doesn't seem to have classic GI symptoms though and I know she told me she had some gluten ( a Kit Kat) a few weeks ago because she "forgot" she had celiac.  She said she didn't feel sick at all except for being light headed, which she did have fainting issues before her diagnosis. She went to the GI yesterday so she got more reinforcement that just because you don't get sick when eating gluten, it doesn't mean that it isn't doing damage and you have to be gluten free for life.

 

We live and learn. I think eating anywhere other than are own homes is the bane of all celiacs' existence.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...