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IgG type antibodies take a long time to go away, and can take a year or so to go down to below the range after going gluten free


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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How high/low is your total IgA? 

We have seen that some have lowish IgA and it is reported as normal.


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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Biopsies from endoscopy/colonoscopy all came back negative, just some mild gastritis, so now what? He said to stick with the gluten free dairy free diet, which I have been doing for a week now and my headaches have gone away, but none of my other symptoms have improved at all. So now I don't know what to do from here. Everything was negative so if its not celiac and its caused by gluten shouldn't I be feeling better by now? If anyone could help me out here that would be great because now I have no idea what the cause could be and my doctor didn't say anything other than to follow Gluten free  while longer and follow up at an appointment in 2 months. Sorry for rambling I am just a little frustrated now, thinking that I would have at least had an answer after a the colonoscopy/endoscopy. Thanks for listening again.

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If you feel better on a gluten-free/DF diet, then it is a good idea to stay on it for the 2 month trial period until you see your doctor again.  Did you get the results of your bloodwork?


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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I have not really felt better on the diet, although its only been a week, I've actually been a little worse in terms of GI symptoms but my headaches have gone away, that's the only improvement so far. And the only blood work that I have had done is the initial blood work where my IgA serum was very low/deficient and my IgG was positive.  

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I did not feel even a little bit better until I was six weeks into the diet. I felt normal closer to a year. Everyone is different. What I am trying to say is that you need to be patient and I know that is difficult. Also, consider eliminating dairy. That might help too,

In any case, you really need to stick it out at least until your next doctor's visit. This is just another "test" that your doctor is putting you through.

Watch for cross contamination and check all labels for hidden gluten.


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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Yeah I will definitely give it some more time, thanks for the advice. I just figured that because the endoscopy was negative that things would improve quickly if it was only an intolerance to gluten as the test ruled out celiac. And I have also eliminated dairy. I have been lactose intolerant for years but have become significantly more sensitive to all forms of dairy in the past year.  

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