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So in a wierd turn of events this morning I had my 3 pieces of bread this morning so as not to go gluten free before GI doc. So far instead of abdominal related pains I've had this tingling in my left leg kinda like just before my a foot falls asleep except it can't be falling asleep because I'm laying down and it's not quite as intense. What is this???

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Also, had feelings like the ground/sometimes surroundings are moving making balance difficult at times, moderate headache, and fatigue is setting in. I'm keeping a log of all symptoms after I eat the bread in the morning. Just strange how varied the symptoms are at times.

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Also, had feelings like the ground/sometimes surroundings are moving making balance difficult at times, moderate headache, and fatigue is setting in. I'm keeping a log of all symptoms after I eat the bread in the morning. Just strange how varied the symptoms are at times.

It could be a migraine. Have you had migraine headaches before?  Sometimes the headache is the least of the migraine symptoms I have.  For me, Wheat is what triggers my migraines.

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Migraines can be pain-free, as weird as that sounds.  Often the day before a migraine I get tired, slow, cranky, and I see zig zags. My husband gets really nauseated from his, but I think that is from the pain.  Sounds and bright lights can be really tough to handle too. Very weird.  Gluten causes migraines for me too.

 

Tingling could be peripheral neuropathy.  It is basically damage being done to your nerves - never good. The tingling is kind of when the nerve is recovering, like when your foot wakes up.  

 

If it is neuropathy, you might want to cut back on the gluten a bit. A gluten challenge needs the equivalent of 1-2 slices of bread per day for 8-12 weeks.  Three slices of bread at breakfast is what you would need to eat over 2-3 days without any other sources of gluten (like pasta, cereal, cookies, crackers, etc).  I think you over did it a bit at breakfast.  :(  Try eating less gluten.  Also, some find it easier to eat the gluten at night so fatigue, pain , and nausea do not affect your day as much... That might not work if you are a light sleeper though.  ;)

 

Hope you feel better.  :)

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The only reason I'm doing it in the morning is because if I get the abdominal pain it keeps me up all night. Otherwise I would do it at night.

Thanks for your help if things continue as is I will call GI office and see what they say.

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I've made the decision to do a strict gluten free diet. I just can't wait for testing. The abdominal pain and diarrhea came back work than ever.

A couple of questions:

1) should I be getting new cookware etc to ensure no cross contamination occurs?

2) if so what all should I replace? Pots, pans, cuuttingboards, plates, utensils?

3) are oats okay? I've reading conflicting ideas.

I don't want to take any chances. The safer the better, I guess?

Thanks everyone.

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I've made the decision to do a strict gluten free diet. I just can't wait for testing. The abdominal pain and diarrhea came back work than ever.

A couple of questions:

1) should I be getting new cookware etc to ensure no cross contamination occurs?

2) if so what all should I replace? Pots, pans, cuuttingboards, plates, utensils?

3) are oats okay? I've reading conflicting ideas.

I don't want to take any chances. The safer the better, I guess?

Thanks everyone.

Please make sure you get diagnosed first, if possible. Anything with teflon/nonstick coating, plastic and anything that can scratch and hold gluten in it. Colanders as well because its too hard to clean all the little crevices. All metal pots are fine. Cutting boards need to go. When looking for things to get rid of ask yourself, "if gluten was a bacteria that I couldn't remove because it's a protein would I still use this?" I got rid of things like my blender and food processor because the bowls were plastic and I used very gluten-y things in them. Depending on how much you cook, you can slowly buy pieces as you need them. If you're old items are in working order you can always sell them (any appliances) or donate them. 

 

Oats - once you are feeling like you are in a good place, with little to no symptoms, try some gluten free oats (make very sure that they are gluten-free) and see how you feel. Don't eat to much at first, because they are pretty fiber-y which could make you think its an issue. So add them in slowly and try not to introduce other foods to see if they cause you any problems. 

 

This article will help further with cleaning up the kitchen. By eating only plain foods and a few certified gluten-free items (mainly spices) I have eliminated all my vertigo, fatigue and all other ataxia symptoms. 

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I've made the decision to do a strict gluten free diet. I just can't wait for testing. The abdominal pain and diarrhea came back work than ever.

A couple of questions:

1) should I be getting new cookware etc to ensure no cross contamination occurs?

2) if so what all should I replace? Pots, pans, cuuttingboards, plates, utensils?

3) are oats okay? I've reading conflicting ideas.

I don't want to take any chances. The safer the better, I guess?

Thanks everyone.

Hi Angel.

 

Read the Newbie 101 thread in the Coping Section.  It covers your questions. (Read the links too)

 

Good Luck

 

Colleen

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I hope you feel better soon.

 

1) should I be getting new cookware etc to ensure no cross contamination occurs?

You really only need to get rid of things that are scratched up, as SkullGirl said.

2) if so what all should I replace? Pots, pans, cuuttingboards, plates, utensils?
I got rid of a teflon pan, a seive-like collander (I kept my other one), scratched up wooden and plastic stir spoons and spatulas. I did not replace my toaster oven, I merely scrubbed it out very very well. I replaced one cutting board that was starting to get old, and bought myself a small plastic board for when we are on the go. I threwnout my old waffle iron too - that thing was older than me.  LOL

 

I kept all my pots, plates, utensils and mixers.

3) are oats okay? I've reading conflicting ideas.

Oats are fine for some but others are bothered by them. If you do eat oats, be sure they come from a gluten-free facility as they can be cc'ed very easily. 

 

Too be honest, now that I feel well, I tend to avoid anything that could possibly make me feel bad again, including oats.

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