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Diagnosis: Celiac Disease ?

bpstrade

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bpstrade Newbie
bpstrade
Posted

Since mid May 2014, I have had frequent lower abdominal pain that has increased in intensity and frequency. The pain is present only when walking or standing, if I sit or lay down the pain disappears within several minutes.  Some days I am pain free even when standing or walking, but other days after sitting the pain reoccurs with standing or walking and again sitting or lying ceases the pain. I can even ride a bike pain free. CT scans and other procedures have not found a cause. Finally, I have been diagnosed with Celiac disease via blood tests and endoscope – biopsy this week.  I have not exhibited any other celiac symptoms. I started checking everything including RX’s for gluten free status. Currently, I am eating only gluten free meals.  Need help understanding the situation. Any comments will be appreciated Thanks

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cyclinglady Grand Master
cyclinglady
Posted

Welcome!

Here is a link to a thread that contains valuable tips for newbies (it can be found in the "Coping"section of this forum):

https://www.celiac.com/forums/topic/91878-newbie-info-101/

Let us know if you have specific questions!

mommida Enthusiast
mommida
Posted

You are supposed to be eating gluten for a successful biopsy.

cyclinglady Grand Master
cyclinglady
Posted

Sorry, that you were diagnosed with celiac disease. The good news is with the gluten-free diet and support from family friends and cyber friends, you can get well.

Besides the newbie tips I discussed earlier, the best advice I can give you is to allow enough time to heal. celiac disease has so many symptoms. Each one of us are different in therms of those symptoms and our rate of healing. Some take one to three years to resolve the symptoms. There is a huge learning curve, so in the beginning you might feel as those you have taken a few steps forward only to slide back due to cross contamination to gluten or a discovery of an intolerance (e.g. Milk ). But you can get better!

Research, research and research! You are your best advocate for your own health.

Again, let us know if you have any questions.

Cara in Boston Enthusiast
Cara in Boston
Posted

My son had little or no symptoms too.  He complained for about a week of having a stomach ache.  Other than that, the only thing we saw was a drastic change in behavior . . . tantrums, easily frustrated, no impulse control (not uncommon for kids)  

 

Once he went gluten free, he was back to "normal" in less than a week.  Then, we started noticing other things that we didn't even know were related.  The dark circles under his eyes went away, he grew three inches, he was sleeping much more soundly, he had tons of energy, his appetite was fantastic, his hair got thick and suddenly, CURLY.  It was weird.  

 

You've been diagnosed with celiac disease so don't let your lack of symptoms deter you from sticking to the diet 100%.  

 

I was diagnosed after my son and realized I had all the classic symptoms (I just thought I was getting old . . . )  I really didn't know how bad I felt until I started feeling great.  No more random headaches, no more insomnia, etc. etc.  Maybe you have symptoms and you just don't realize it.

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