Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Ocala, Florida Area


Stormtracker

Recommended Posts

Stormtracker Newbie

Hello, I am looking for a doctor in the Ocala/Dunnellon/Citrus Springs, Crystal River area that KNOWS about gluten intolerance. I am looking for a doctor that will take time to speak with me about the issues I am having. I know for a fact I am gluten intolerant. I have never been diagnosed, but I do know from an early age bread always made me so sick, cookies and cakes made me ill and I have the WORST pains all over my body when I eat anything with wheat in it. Bad depression, anxiety, low sugar, joint aches, bathroom issues, the whole nine yards.....most doctors want you to eat a gluten filled diet for about six months before they test you I simply CAN'T DO THAT. I'll get extremely sick. I need some other form of tests..........I am on Blue Select and hardly any good doctor actually takes this insurance. Any help would be greatly appreciated! Thanks....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi and Welcome To The Forum.

 

Unfortunately, Blood Tests and Endoscopic Biopsies are how they diagnose Celiac.  A gene test and symptoms can corroborate the results.  Both require a gluten challenge.  You can always decide not to have any tests and start a strict Gluten Free diet.

 

Colleen

Stormtracker Newbie

Hi and Welcome To The Forum.

 

Unfortunately, Blood Tests and Endoscopic Biopsies are how they diagnose Celiac.  A gene test and symptoms can corroborate the results.  Both require a gluten challenge.  You can always decide not to have any tests and start a strict Gluten Free diet.

 

Colleen

I just got back from the doctor and I am having a blood test tomorrow the usual bloodwork plus another blood test he said to test for Celiac. He seemed to really want to diagnose me with depression, I told him I don't have that and he tried and tried to get me to admit I was depressed. He didn't mention any gluten challenge and seemed like he wasn't worried about anything I was telling him concerning how I feel after I eat......

squirmingitch Veteran

You have been gluten free so the test will come back negative & he'll say he was right BUT unless you have been doing a gluten challenge than of course the tests will come back negative. So he will feel all superior & vindicated but he's WRONG b/c he doesn't know what he's doing. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442

    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...