Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Returning - Oats?


mbledtke

Recommended Posts

mbledtke Newbie

Hello!

 

I was diagnosed with Celiac about 1.5 years ago.  Within a few weeks of stopping gluten, I had relief of so many issues that I never even realized were Celiac related - aside from the gut issues, the big ones were the foggy headedness, anxiety, and hair loss (mostly in the shower).  Within about 2 weeks I felt like a few person!
 

My issue is that starting in the month of April, many of these symptoms have come back (hair loss, anxiety, mentally foggy).  Around that time, I had a back injury and was on several medications (pain killers, muscle relaxants, anti inflammatories - all of which were gluten-free), so I blamed my issues on the meds.  I've been off the meds for about 6 weeks now, and the symptoms still remain.  

 

These symptoms are exactly how I felt before going gluten-free.  I contacted my doc and asked for another celiac blood panel, to see if I was somehow getting "glutened" without realizing it.  My labs came back today and all of my levels are the lowest they have even been - all well within a normal range.  

 

My question is - I have always suspected that I may be sensitive to oats - even certified gluten-free oats.  Does anyone else have this issue?  In April, I started taking Juice Plus supplements and Vega shakes for breakfast - both of which are gluten-free, but both have Oat Bran as an ingredient, as I recently discovered.  Could this be the source of my issues?  Does anyone else have oat sensitives?   Could the symptoms mimic what gluten does to my body?

 

Thanks for any insights - I'm desperate to get back to feeling like "me".

 

Moni

Silver Lake, WI

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I do not have oat issues and can eat certified gluten-free oats without any problems but the oats most likely used in those supplements and shakes are not certified......unless they specifically state that is what they use. I have never seen certified oat bran in anything, just oat bran, and this is why we have to check the oat added foods/supplements carefully. Reactions to oats can mimic a wheat gluten reaction, as does dairy.

Hope you feel better soon and can figure this out!

ravenwoodglass Mentor

You could try dropping both those items and see if your symptoms resolve. You could always challenge them again when you are feeling well to see if the same thing happens.

GF Lover Rising Star

Yup, cut the oat bran.

 

:)

squirmingitch Veteran

I concur.

cap6 Enthusiast

Absolutely cut out that oat bran!!

mbledtke Newbie

Thank you all.  I'm not as much thinking CC from uncertified gluten-free oats - I would think that my blood panel would have showed that after 4 months, right?  Do you think it could just be the oats themselves, not gluten at all?  I remember reading somewhere that in some Celiacs oats can mimic gluten, and the body can respond the same way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

  Do you think it could just be the oats themselves, not gluten at all?  

Yes. 

Gemini Experienced

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

squirmingitch Veteran

It could be a reaction to oats themselves but you would have to try certified gluten-free oats to test that.  Eating a supplement with oat bran in it is most likely not going to be certifed gluten-free or truly gluten-free.

 

I am not certain whether a small amount of cc would show up in your bloodwork.  Would it be enough to trip it over into a positive?  Not sure but if you routinely are tested where they give you an actual number on the DGP testing, it would be interesting to see if that number climbs towards a positive at all, if you believed you were being cc'd.

I agree with this. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,214
    • Most Online (within 30 mins)
      7,748

    DawnRS
    Newest Member
    DawnRS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @MegRCxx, it is common for people with celiac disease to have other food intolerances as well. Most common offenders are oats (even gluten free oats) and dairy. Soy, eggs and corn are less common but not rare. So, factor into your consideration.
    • MegRCxx
      Thank you @Scott Adams!! I will definitely have a read through these! If anyone is curious to what i had eaten and am worried about it was the tescos finest frozen bourginoun and creamy mash, only allergen stated was milk but it does contain yeast extract which i am aware can be a bit of an odd one. Once again thank you 🙏🏻 
    • Scott Adams
      The short answer is that it would be good for you to learn more about how to read labels, but sticking to looking for "gluten-free" on packaged foods is a great place to start. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    If you have some time for a good read, here is chapter 1 of a full book published on Celiac.com that deals with the social aspects of celiac disease:  
    • MegRCxx
      I have recently started a gluten free diet (waiting for confirmation via endoscope biopsies) I had started to reduce after the biopsy and then had a McDonald’s which confirmed to me my suspicions so decided to go full gluten whilst on holiday as i wanted to enjoy myself, since being back i have noticed that i have got increasingly more anxious due to feeling sick when i had accidentally eaten some on holiday. And not im reading labels worrying if everything doesnt state is gluten free but the ingredients look like they check out may still have gluten in.  Im panicking myself making myself feel worse and seem to be at a bit of a loss, i dont know anyone else with coeliac disease and am finding it all quite overwhelming. any advice is greatly appreciated:)
    • Scott Adams
      We've done some articles on this over the years: https://www.celiac.com/search/?q=colleges&quick=1&type=cms_records2 You might also check College Confidential or Reddit’s r/Celiac for firsthand student experiences. Some schools, like the University of Arizona and Oregon State, are known for their allergy-friendly dining halls—calling their nutrition services directly can give you specifics. If you’re touring campuses, ask about dedicated prep spaces, ingredient labeling, and student support groups. A guide focused solely on this would be so useful—maybe someone here has found one?
×
×
  • Create New...