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Only 1 test positive??

SpeechM

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SpeechM Newbie
SpeechM
Posted

Hi Everyone,

I am a newbie here as I am still trying to figure out if I have celiac disease or not!  Have had multiple issues with fatigue and joint pain for years.  Was treated for lupus but have now been told that it is not lupus.  I am now being looked at by my Rheumatologist as possibly having psoriatic arthritis.  Have had a lot of gastrointestinal issues as of late and mu regular GP ordered celiac panel.  Only test that came back positive was GLIAD (DEAMINATED) AB,IgG.  My GP said that I do not have Celiac disease but my Rheumatologist says that I do.  Can I have the disease or at least a gluten intolerance with only 1 test positive? Thanks for any information or clarification you can give me!!

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cyclinglady Grand Master
cyclinglady
Posted

I tested positve to only the DGP IGa and yet biopsies revealed a Marsh Stage IIIB (moderate to severe intestinal villi damage.  Even when glutened and with follow-up testing, I still test this way.  Try to research more.

Good Luck!  

squirmingitch Veteran
squirmingitch
Posted

Do you have copies of the celiac panel? Could you post the test results along with the reference ranges? It could be (often is) that your doc did not perform the current FULL celiac serum panel.

Stacy0w Enthusiast
Stacy0w
Posted

I only tested positive to the gliadin iga.  It was well over 100. From that alone they diagnosed me. 

cyclinglady Grand Master
cyclinglady
Posted

Just to clarify, when I said to research more, I just wanted you to find more evidence from credible sources (like the University of Chicago or one of many celiac books by doctors: Murray or Fansano who are experts in celiac disease) to share with your doctors.  Your GPA is mis-informed and that happens all the time.  Even GI docs make mistakes. 

celiac disease is tricky to diagnosis.  Running all the available  celiac disease tests gives the doctor the best means of catching a diagnosi.  Nothing is fool-proof!  One positive is all y ou need to go on to the next step which is often the endoscopy.  But some folks take the blood test resultsas the final diagnostic tool for a variety of reasons (long wait in Canada, financial issues, etc. 

 

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