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BmariedRN

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BmariedRN Newbie
BmariedRN
Posted

I'm new to this and have never posted on a forum before or cared to read any... There's a first for everything! I was diagnosed with Lyme disease .. Treated... And a bunch of crazy symptoms have continued. At first I thought it was still Lyme but now I'm not so sure. Needless to say I've been seeing a natural doctor have found out I'm "sensitive to gluten" through an IGG test ( not always reliable according to some doctors ). I've been trying to eat gluten free to see if all my symptoms start to go away. 

Here is my list of symptoms:

24 hour twitching in my legs (sometimes other random spots on my body) 

creepy crawly feeling in my extremities 

brain fog/head rush when I stand up sometimes

tinnitus 

muscle / bone pain

extreme depression at random times

different sized pupils (sometimes) 

Random pains in my head

forgetting words- forgetting what I was going to say ALL THE TIME

panic attacks / anxiety (which I've NEVER had before) 

HEART PALPITATIONS LIKE CRAZY- noticed especially after drinking 

and the most recent/annoying symptom neck pain/ feels like my lymph nodes are stinging (wondering if anyone else has felt this) 

lymph nodes in neck are swollen and pea sized

oh- and I just have been recently diagnosed with very minimal ulcerative colitis! 

Sometimes I have abdominal pain and diarrhea.. But not all the time like most people experience. There's also a bunch of other symptoms but these are the main ones I can remember right now.

i guess what I'm looking for from posting is to hear other people's stories/ see if anyone else has experienced the same things I've experienced. I've seen a cardiologist a neurologist and no one could find out anything wrong. I'm an RN so I'm very sensitive to these symptoms and sometimes I feel like I'm a crazy patient .. But I know what I feel... And it's not fun.

thanks in advance for anyone who replies! :) 

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mommida Enthusiast
mommida
Posted

I've heard of cases where Lyme triggered gluten sensitivity.  Lyme could have "triggered" Celiac.

A lot of your symptoms are connected to vitamin B 12 deficiency.  Vitamin B12 is water soluble and is not linked to a toxic level danger.  If you take too much you would most likely get "D". 

Are you going to get further testing at your doctor's office?

cyclinglady Grand Master
cyclinglady
Posted

How long have you been gluten free?  You might consider getting tested for celiac disease.  The catch is that you must be consuming gluten for 8 to 12 weeks prior to a blood draw.  

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