Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Do I need to be eating gluten before skin biopsy?


Everlong

Recommended Posts

Everlong Newbie

Hello I'm new. I have what I'm pretty sure is DH on my elbows and shins. Intensely itchy, red blisters that when scratched look like bites. Back in Sept 2015 I had them on both knees too. I have hives most day, have a burning sensation  and feel 'poisoned' I also have ibs and fibro. 

I came off gluten in Nov and the rash became less red and the itching stopped within a week, I now just have pale brown scars. My GP wanted to test me for celiac disease and asked me to go back on the gluten for 6 weeks but I lasted 7 days. Felt terrible. That was end of December, the rash started up again early Jan and it's worse than ever. I am going to see a dermatologist in the next week or two.

 

Would he be able to get a positive for DH if I've been off gluten or do I need to go back on it again? 

Many thanks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Yes, you have to be eating gluten for the skin biopsy the same as you do for the blood panel.
Open Original Shared Link

Read this:

Open Original Shared Link

"Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease. However, they almost always have the same, gluten-dependent intestinal damage as those with the more common symptoms of celiac disease."

 

Open Original Shared Link

A biopsy is done on a clear spot NEXT to an active lesion NOT ON one.

 

Open Original Shared Link

 

Link to comment
Share on other sites
Everlong Newbie

Thank you for you reply and the links, I will have a look at them now.

Link to comment
Share on other sites
katelyann812 Newbie
3 hours ago, Everlong said:

Hello I'm new. I have what I'm pretty sure is DH on my elbows and shins. Intensely itchy, red blisters that when scratched look like bites. Back in Sept 2015 I had them on both knees too. I have hives most day, have a burning sensation  and feel 'poisoned' I also have ibs and fibro. 

I came off gluten in Nov and the rash became less red and the itching stopped within a week, I now just have pale brown scars. My GP wanted to test me for celiac disease and asked me to go back on the gluten for 6 weeks but I lasted 7 days. Felt terrible. That was end of December, the rash started up again early Jan and it's worse than ever. I am going to see a dermatologist in the next week or two.

 

Would he be able to get a positive for DH if I've been off gluten or do I need to go back on it again? 

Many thanks.

Omg! I was diagnosed with celiac in Nov. I had all the stomach problems. I ate gluten last week.. And have been having the hives ALL over. I just went to the dermatologist and took 2 biopsies in order to see if the hives are connected to DH.

i am suffering! I feel your pain. Any advice you could share with me? 

Link to comment
Share on other sites
squirmingitch Veteran

katelyann, it doesn't matter if your hives are dh. You have celiac disease, no need to be dx'd with dh. You just have to be super careful not to get cross contaminated. Since your gluten exposure was assumedly only once last week then your biopsies will turn up negative for dh IF the derm took them correctly. You would have had to be eating gluten for a while for the biopsies to come up positive. You ought to take a look at hives & dh & compare because they are completely different things.

Link to comment
Share on other sites
squirmingitch Veteran
1 hour ago, Everlong said:

Thank you for you reply and the links, I will have a look at them now.

You're welcome.:)

Link to comment
Share on other sites
squirmingitch Veteran
1 hour ago, Everlong said:

Thank you for you reply and the links, I will have a look at them now.

You're welcome.:)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
2 hours ago, katelyann812 said:

Omg! I was diagnosed with celiac in Nov. I had all the stomach problems. I ate gluten last week.. And have been having the hives ALL over. I just went to the dermatologist and took 2 biopsies in order to see if the hives are connected to DH.

i am suffering! I feel your pain. Any advice you could share with me? 

If it is not DH, then consider researching a histamine intolerance which may just be temporary.  I am not a doctor, but something to think about.  In any case, remaining gluten-free is critical.  Sorry to hear you were glutened!  :(

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,154
    • Most Online (within 30 mins)
      7,748

    Ohwowitsgluten
    Newest Member
    Ohwowitsgluten
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CatherineWang
      I'm pretty sure that in stores, you can find plenty of gluten-free options. But they are usually a bit more expensive.
    • cristiana
      Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, far more than the operation site.  It took a few days to really settle down, I was quite badly bruised. It was taking so long I was a bit concerned so asked the question on another forum. A few patients came back to me and said they had suffered the same.  I imagine in my own case possibly the throat got bashed about a bit,  maybe they had difficult inserting the tube?  I've suffered with a painful throat post-endoscopy too, but never as long as the intubation pain.   I hope you will be feeling better very soon.   PS BTW - love the name!  I saw this today in an Easter display in a shop and your name reminded me of it.🙂  
    • cristiana
      This wonderful, Anne. I think you have a point about why people disappear off forums.  I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal).  However, once my antibodies were back within normal range it really has made a big difference to my health.  I've chosen to stick around because I'm a Mod, otherwise I might have been one of those that disappeared, too!      
    • Exchange Students
      Yes absolutely, we work with all public schools and some private schools in all 50 states.
    • Scott Adams
      Just a quick question, can the host live in any state in the USA?
×
×
  • Create New...