Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

B12 supplements?!


KJDx

Recommended Posts

KJDx Rookie

Hi,

Just wondering people's opinions on b12 supplements. Ive currently had a blood test that shows I have a severe deficiency in vitamin D, I'm also anaemic and have very very low ferritin levels. I've also had borderline celiac test results however they forgot to check my b12 levels (very annoying)

Im just wondering if anyone has been taking vitamin b12 supplements and their experience? As im thinking about getting some.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

No, I would not recommend taking B-12 unless you are deficient based on lab results.  There are several types of anemia.  The low iron stores that you have (ferritin) appears that you have iron-deficiency anemia.  But you could have a different anemia on top of that one (I have Thalassemia which is genetic and diet or supplements are never going to change that).  Email your doctor and ask to be tested for B-12 and folate.   

Do research about B-12.  

Open Original Shared Link

My levels were sky high (over 2,000 and the top of the lab range is 900).  I was not taking any supplements.  Folate levels are crazy high too.  Of course, I went to Dr. Google and found that various types of cancer are common with such high results.  But I do not have cancer.  My doctor said my body would eliminate any excess but she might be wrong.   I looked to my diet.  I had been drinking soymilk for decades and it is supplemented with B-12 (cobalamin) because many vegans are deficient because of their diets.  I am a meat eater so it did not apply to me and good luck trying to find soymilk that does not have it (possible but the choices are few).  I stopped consuming any processed  foods that had b-12 added and my blood levels dropped a bit.  So, it appears that I do not process the cheap version of b-12.  If I were deficient, I would need to add a sub-lingual b-12 that is methylated (is that a real word?) (Methylcobalamin).  Same goes for my folate levels.  

I work at just eating a whole foods diet (lots of variety) and skip supplements.  

Research Vitamin D.  Most folks are deficient thanks to sunscreen.  So, I strive for balance.  I get my dose of sun and worry less about adding vitamin D which is now normal after being gluten free for three years.  But I live in Sunny California and am outside a lot!  I still wear sunscreen but prefer to cover up and use the sunscreen when I go on long rides, etc.  I might rethink Vitamin D if I were to live in Canada.  

Irene Joanne Explorer
2 hours ago, cyclinglady said:

No, I would not recommend taking B-12 unless you are deficient based on lab results.  There are several types of anemia.  The low iron stores that you have (ferritin) appears that you have iron-deficiency anemia.  But you could have a different anemia on top of that one (I have Thalassemia which is genetic and diet or supplements are never going to change that).  Email your doctor and ask to be tested for B-12 and folate.   

Do research about B-12.  

Open Original Shared Link

My levels were sky high (over 2,000 and the top of the lab range is 900).  I was not taking any supplements.  Folate levels are crazy high too.  Of course, I went to Dr. Google and found that various types of cancer are common with such high results.  But I do not have cancer.  My doctor said my body would eliminate any excess but she might be wrong.   I looked to my diet.  I had been drinking soymilk for decades and it is supplemented with B-12 (cobalamin) because many vegans are deficient because of their diets.  I am a meat eater so it did not apply to me and good luck trying to find soymilk that does not have it (possible but the choices are few).  I stopped consuming any processed  foods that had b-12 added and my blood levels dropped a bit.  So, it appears that I do not process the cheap version of b-12.  If I were deficient, I would need to add a sub-lingual b-12 that is methylated (is that a real word?) (Methylcobalamin).  Same goes for my folate levels.  

I work at just eating a whole foods diet (lots of variety) and skip supplements.  

Research Vitamin D.  Most folks are deficient thanks to sunscreen.  So, I strive for balance.  I get my dose of sun and worry less about adding vitamin D which is now normal after being gluten free for three years.  But I live in Sunny California and am outside a lot!  I still wear sunscreen but prefer to cover up and use the sunscreen when I go on long rides, etc.  I might rethink Vitamin D if I were to live in Canada.  

That's interesting about the b12. I was concerned about my level because it was over 900- but not by much. I thought it very odd, since I never take any b12 supplements and had been very ill the whole year before the blood test. My folate levels were a little high too- yet I'm low in calcium, iron and vitamin D. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...