Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Confused by blood results & Hello!

bees

Recommended Posts

bees Newbie
bees
Posted

Hello, I'm new here. :)

Add me to the "I'm confused about my results" club.

Positive for Tissue Transglutaminase IgG Ab (result was 10 - strong positive). But negative for the other IgG antibody (Gliadin) and IgA tests (I believe I am IgA deficient so this is suspected).  My diet at the time of test was while I was eating gluten.  No biopsy and I don't plan to get one - I'm going gluten free no matter what.  I started gluten-free a week ago and I'm already starting to feel positive effects with a little bit more energy.  Though today I am definitely detoxing and feel like I have the flu minus a fever/chills.

Background: Have PCOS & Hashimoto's thyroiditis (autoimmune disease that attacks thyroid - I've heard it is common to get other autoimmune diseases once you have one).  Symptoms are fatigue, irritability, hard time concentrating/thinking clearly, joint pain/inflammation, hives (started past summer and has increasingly spread - they are constant), itching, indigestion/burping/nausea/gassy.  Been feeling all of the above for about 4 years now, but always suspected at least a gluten sensitivity as I have chicken skin and about half those symptoms for many years.  

My question is: going by just the blood results would you diagnose Celiac or just gluten sensitivity?  I do carry the gene mutations for Celiac as well.  

Thank you in advance for any help and for having me here! :) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum.   We are not doctors, just folks who have issues with gluten.   We can not diagnose you.  If you feel better by going gluten free, then by all means go for it!  

The gene test does not diagnose celiac disease since about 30% of the population has those genes.  It can exclude celiac disease.  You did not post the ranges or the actual results of all your celiac testing either.  But again, we can not diagnose you.  We can help you live the gluten free lifestyle.  Check out our Newbie 101 thread located at the top of the "Coping" section.

 

 

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. If you can't or don't want to get the endo then just stay gluten free and see how your symptoms improve and then get the blood tests redone and see if the antibodies have gone down. Be aware that if you are celiac as you heal it may impact your absorption of any meds you take. keep on the lookout for any symptoms that might be related to that.

bees Newbie
bees
Posted
  • Author

Thank you.  Of course I realize you aren't doctors - I understand that.  I guess I was looking for a more concrete answer based upon blood results.  I don't know how to read them, and my doctor is just about useless (he basically just said I need to go gluten free).

The lab ranges for my positive result are 0-5 Negative, 6-9 Weak Positive, and >9 Strong Positive.  I came back as a 10.  

Im confused how I could get one strong IgG positive (tissu) and the Glidian of the IgG would be negative.

I appreciate your response.

 

bees Newbie
bees
Posted
  • Author
23 minutes ago, ravenwoodglass said:

Welcome to the board. If you can't or don't want to get the endo then just stay gluten free and see how your symptoms improve and then get the blood tests redone and see if the antibodies have gone down. Be aware that if you are celiac as you heal it may impact your absorption of any meds you take. keep on the lookout for any symptoms that might be related to that.

Thank you.  I will keep your advice in mind.  

cyclinglady Grand Master
cyclinglady
Posted

Are you sure you are IgA deficient?   You just need one positive on the complete celiac panel to move forward with the endoscopy, but you have opted out of that step.  So, the best thing is to trial a gluten-free diet.  I would still recommend following up with a GI for a second opinion.  Plus, your endo is not celiac-savvy from what you stated.  

bees Newbie
bees
Posted
  • Author
1 hour ago, cyclinglady said:

Are you sure you are IgA deficient?   You just need one positive on the complete celiac panel to move forward with the endoscopy, but you have opted out of that step.  So, the best thing is to trial a gluten-free diet.  I would still recommend following up with a GI for a second opinion.  Plus, your endo is not celiac-savvy from what you stated.  

It is suspected, but not definite.  They came back negative, fwiw.  

It isn't that I don't necessarily want get the endo.  But more I already have an upcoming surgery scheduled.  My plate is full.  I want to get started being gluten-free, and I've heard you need to be on a gluten diet for a while to get accurate results?  If I would opt to get one done in the fall I'm sure a lot of the damage will be gone with a gluten-free diet, correct? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

HA!  I got my endos mixed up!  Anyway, yes, you need to be on a gluten diet for all celiac testing to be accurate.  You can consider a gluten challenge later, but it can be brutal.  Everyone heals at a different rate and the gluten free diet has a steep learning curve.    It can take months or years to heal.  

Learn more about a challenge:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...