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jantwins

Swollen ankles and feet

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Hi I am sorry to bother but I have just had a strong positive test for coeliac. Went to my doctors a month ago with swollen ankles and feet, the blood tests came back fine apart from low protein in my blood and high haemaglobin, just wondering if anyone else has had these symptoms and on being diagnosed, they have got better?

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I have had them for years, but I do not think mine is related to celiac even after getting off gluten for over 3 years it starts off fine in the morning but they swell throughout the day, and by the end of the day the lines in the bottoms of my feet can not be defined and the ankles are a puffy. I found a few things seemed to help like compression wear, supplements to help with circulation, and trying to reduce water retention. NOTE I walk about 12 miles a day average and this might have part to do with it.  I think your issue might be with general inflammation of body caused by the heightened antibodies in your system DO not quote me on this just a side thought perhaps someone else has had symptoms like yours. It is a autoimmune disease and effects people differently with all kinds of issues.

On a side note welcome to the forums. Do you have any other celiac symptoms? I will give some links we generally show to people new to the diet. We do suggest a whole foods diet for the first few months also to help with healing, while your doing this perhaps try reducing your salt intake?

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Low blood protein can be the result of malabsorption in celiac disease and is a possible cause of the swelling in your feet. A gluten-free diet will reduce your symptoms if this is the case. 

High hemoglobin levels seem less likely to be related to celiac disease. Smoking is probably the most  common cause (also living at an altitude). However, if neither of these apply it may be best to discuss this result with your doctor and see what they think is going on.

Good luck! 

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On 5/18/2017 at 8:33 AM, jantwins said:

Hi I am sorry to bother but I have just had a strong positive test for coeliac. Went to my doctors a month ago with swollen ankles and feet, the blood tests came back fine apart from low protein in my blood and high haemaglobin, just wondering if anyone else has had these symptoms and on being diagnosed, they have got better?

Hello!  Celiac Disease causes malabsorption of nutrients and vitamins.  While you're healing, you may not be able to absorb all you need, and supplementing may be necessary.  Vitamin D and the B complex vitamins are often low in newly diagnosed people.  Here's an interesting article on how low vitamin levels may be contributing to the edema.  

http://www.progressivehealth.com/5-vitamins-to-reduce-fluid-retention.htm

Hope this helps!

 

 

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I found that I did not have enough iodine in my diet... so I take a Kelp pill... every day or so... I use Kosher salt and Pink Salt... so I need the iodine... I am shocked by what my ankles look like... I was always swollen... If you can eat shellfish... you should not have any issues with this... 

 

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My feet used to swell up too. Impossible to sleep. Started using compression stockings and that helped. Off that job for half year, meanwhile getting 100% gluten free. Back on my feet again all day and 2 weeks later notice my feet are not swelling or heating up like before. So yes, there is a connection. 

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